i just got another note from the GI doctor saying my insurance doesnt cover Humria and i have 2 options.
Continue the 6mp and consult a liver doctor about
my high numbers or go through the entire colonoscopy process again and get biopsies again because they were not able to determine what kind of IBD i had prior when i was flairing up (Chrons or UC). They had just determined it to be "IBD undetermined".
I am convinced nobody in the medical field has a clue at this point. I dont want to go through another colonoscopy with no symptoms. That makes no sense.
Did the 6mp get me into remission? No idea......the first flare i had a few years ago went away on its own and they did the colonoscopy then with biopsies and had no clue other than to mark down IBD-U which means i could have either UC or chrons or ??? The GI doctor i followed up with couldn't even read what the doctor that did the procedure wrote down. Since it went away on its own i didnt get on meds then The last flare i had was ~9 months ago...i got the 6mp then but by the time i started taking it my symptoms were already going away. They had put me off and on pred for a month or more. I continued to take the 6mp this whole time and the doctors seemed pretty proud of themselves for helping me out but i was never convinced they did anything really.
i asked up and down if the 6mp was safe and they said yes. I was on 75mg of that throughout my flare. I went back for a follow up after a month or 2 and my symptoms were gone. They then decided i should be taking more 6mp which makes no sense and upped my dose to 125mg (2.5 pills) per day. I questioned why i would need to take more since i wasnt having any symptoms and they said...oh....it will help keep it away?!?. So..thats what i did and now my liver is all fouled up.
Now since they cant determine what a have and my insurance wont cover whatever they are trying to prescribe next because they didnt figure it out the first time, i have to go through all that again for absolutely no reason just to get on a drug for something i am having no symptoms for? That makes 0 sense. I am so sick of dealing with these idiots and wasting my time running back and forth to appts. I am going to lose my job eventually (or so i fear). I realize that alot of folks have it a LOT worse off than i do as i have only had 2 flares ever so i shouldnt complain i guess but for crying out loud....how hard can it be? Its all just tubes......
Post Edited (simon71) : 12/7/2019 10:59:03 AM (GMT-7)