Open main menu ☰
HealingWell
Search Close Search
Health Conditions
Allergies & Asthma Alzheimer's Disease Anxiety & Panic Disorders Arthritis Breast Cancer Chronic Fatigue Crohn's Disease Cystic Fibrosis Depression Diabetes Epilepsy
Fibromyalgia General Chronic Illness GERD & Acid Reflux Headaches & Migraines Hepatitis Irritable Bowel Syndrome Lupus Lyme Disease Multiple Sclerosis Parkinson's Disease Prostate Cancer

Chronic Illness Blog »
All Health Conditions »
Support Forums
Anxiety & Panic Disorders Bipolar Disorder Breast Cancer Chronic Pain Crohn's Disease Depression Diabetes Fibromyalgia GERD & Acid Reflux
Hepatitis Irritable Bowel Syndrome Lupus Lyme Disease Multiple Sclerosis Ostomies Prostate Cancer Rheumatoid Arthritis Ulcerative Colitis

All Support Forums »
Log In
Join Us
Close main menu ×
  • Home
  • Health Conditions
    • All Health Conditions
    • Chronic Illness Blog
    • Allergies & Asthma
    • Alzheimer's Disease
    • Anxiety & Panic Disorders
    • Arthritis
    • Breast Cancer
    • Chronic Fatigue
    • Crohn's Disease
    • Cystic Fibrosis
    • Depression
    • Diabetes
    • Epilepsy
    • Fibromyalgia
    • General Chronic Illness
    • GERD & Acid Reflux
    • Headaches & Migraines
    • Hepatitis
    • Irritable Bowel Syndrome
    • Lupus
    • Lyme Disease
    • Multiple Sclerosis
    • Parkinson's Disease
    • Prostate Cancer
  • Support Forums
    • All Support Forums
    • Anxiety & Panic Disorders
    • Bipolar Disorder
    • Breast Cancer
    • Chronic Pain
    • Crohn's Disease
    • Depression
    • Diabetes
    • Fibromyalgia
    • GERD & Acid Reflux
    • Hepatitis
    • Irritable Bowel Syndrome
    • Lupus
    • Lyme Disease
    • Multiple Sclerosis
    • Ostomies
    • Prostate Cancer
    • Rheumatoid Arthritis
    • Ulcerative Colitis
  • Log In
  • Join Us
  • Connect With Us
    • Facebook
    • Twitter
    • Pinterest
    • LinkedIn
Join Us
☰
Forum Home| Forum Rules| Moderators| Active Topics| Help| Log In

Recently taken-down friends

Chronic Illness Forums
>
Ulcerative Colitis
>
Recently taken-down friends  
✚ New Topic ✚ Reply
1 2 3 4 5 6 7 8 9 1011
❬ ❬ Previous Thread |Next Thread ❭ ❭
profile picture
valli1234
Regular Member
Joined : Aug 2017
Posts : 299
Posted 1/23/2019 6:43 AM (GMT -7)
I find carbs stay in me longer and tend to increase my bathroom trips. Regarding food has anyone every had a blockage. I still avoid raw vegetables and a few other things. I have a neighbor a few doors down that has had several blockages. I understand with a ileostomy you would get blockages but how common are they when you have a pouch?
48 year old female mother of 4
UC since 1993 remission off and on
The last flare-up was 2008 till 2009 remission till June 2017
Hospitalized November 2017 for 5 weeks
Anemia 4 blood transfusions in hospital
prednisone, asacol, pentasa,encort enemas, steriod enemas, hurmia all failed
Dec/17 Total colectomy
March/2018 2nd surgery J pouch
Take down 3rd surgery Aug/ 18
Sept- present cuffitis
profile picture
ks1905
Veteran Member
Joined : Sep 2005
Posts : 5418
Posted 1/23/2019 7:26 AM (GMT -7)
I’ve had blockages, they clear themselves. Drink so wine, cola, coffee and add a hot pad or shower.

It’s really noisy and bloating. I’m not sure good caused any of mine.

I eat most things. You should definitely avoid popcorn. Chew your food and drink
Keith

DX'd with Severe Pancolitis June 2005
Previous Meds: 5ASAs, Predisone, 6-MP. Remicade, Humira, Simponi, Cimzia & Cyclosporine
3-step J-Pouch surgery: 2013 & 2014

Current Condition: Chronic Pouchitis -- Not as bad as I thought it would be
Current Meds: Stelara
Total Hip Replacement: 12/16 -- Thanks Prednisone!!!
www.healingwell.com/community/default.aspx?f=38&m=3755226
profile picture
ks1905
Veteran Member
Joined : Sep 2005
Posts : 5418
Posted 1/23/2019 9:58 AM (GMT -7)

valli1234 said...
I find carbs stay in me longer and tend to increase my bathroom trips.

Some carbs can bind you like breads, rices and other starches. (my surgeon recommend them after take down).

Sugars can increase frequency is some people like alcohol and deserts.
Keith

DX'd with Severe Pancolitis June 2005
Previous Meds: 5ASAs, Predisone, 6-MP. Remicade, Humira, Simponi, Cimzia & Cyclosporine
3-step J-Pouch surgery: 2013 & 2014

Current Condition: Chronic Pouchitis -- Not as bad as I thought it would be
Current Meds: Stelara
Total Hip Replacement: 12/16 -- Thanks Prednisone!!!
www.healingwell.com/community/default.aspx?f=38&m=3755226
profile picture
ks1905
Veteran Member
Joined : Sep 2005
Posts : 5418
Posted 1/23/2019 10:02 AM (GMT -7)

Bull101 said...

NSSG, and this is maybe a good note for all new jpouchers, for me it depends a lot on what I eat. usually I eat a cheese, grit, meats casserole for breakfast, and a chicken cobb salad for lunch. If I do that I go maybe once around 8am (12 hours after dinner), and then most days I don't have to go until around 4:30-5:30 which is incredible for me.

It doesn't matter what I eat, I am very regular and similar to your schedule, 8AM, 4;30-5:30 and then once before bed.

I have difficulty emptying my pouch if it is not liquid and can take me some time to empty but I'm not living in the bathroom like I did with UC. I am fortunate that I can always sleep through the night without getting up to empty.
Keith

DX'd with Severe Pancolitis June 2005
Previous Meds: 5ASAs, Predisone, 6-MP. Remicade, Humira, Simponi, Cimzia & Cyclosporine
3-step J-Pouch surgery: 2013 & 2014

Current Condition: Chronic Pouchitis -- Not as bad as I thought it would be
Current Meds: Stelara
Total Hip Replacement: 12/16 -- Thanks Prednisone!!!
www.healingwell.com/community/default.aspx?f=38&m=3755226
profile picture
notsosicklygirl
Forum Moderator
Joined : Dec 2008
Posts : 17160
Posted 1/24/2019 9:54 AM (GMT -7)

Woogy said...
No I haven't tried antibiotics. The doc wants to wait for the MRE before doing anything. Yeah I have been using Tylenol now but last night all I could find was Aleve. It was 3am and I was too exhausted to do downstairs to find the Tylenol. I hope something shows up on Wednesday so I can get relief.

How did it go Woogy? I hope you got some answers.
Moderator: UC
Currently: no meds 6/15 Step 1 J-pouch Surgery Complete 9/15 Step 2 Complete 11/15 Step 3 Complete
From Sickly to UC Free

Give a man a fish and he will eat for a day; teach a man to fish and he will eat for a lifetime; give a man religion and he will die praying for a fish
profile picture
Woogy
Regular Member
Joined : Apr 2004
Posts : 180
Posted 1/25/2019 8:24 AM (GMT -7)
Got the results back from my doc. There are no surgical complications but there is inflammation in the pouch and the cuff. So they want to start me on an antibiotic. I did ask them if I should also use a suppository since I have inflammation in the cuff too. I really hope this helps me feel better.

For those of you who go on schedule and only get up once a night, I'm so JEALOUS!!! LOL I would love to sleep through the night just once. I get up every 1-2 hours to go. Ugh. :-(
~Diagnosed in 2001 - Left Side UC
-Vit D, Vit C, Multivitamin

Previously tried colozal, lialda, asipro, sulfasalazine, rowasa, canasa, hydrocortisone enemas, Imuran and Humira - they all failed or made symptoms worse.

**Step 1 of 3 - Surgery on 1/29/18**
**Step 2 of 3 - Surgery on 8/6/18**
**Step 3 of 3 - Surgery on 11/12/18**
profile picture
ks1905
Veteran Member
Joined : Sep 2005
Posts : 5418
Posted 1/25/2019 9:10 AM (GMT -7)
Woogy,

When you take antibiotics (If they are effective) then they kill most of bulk in the stool because it is bacteria. So you end up going less often. I was going like once or twice a day when I was on them and doing well.

Your pouch is so new that it will still take some time to develop and adjust.

There is a stat out there (I don't remember it exactly) but it is somewhat common for j-pouchers to develop pouchitis the first year or so. It is much less common for it to be chronic.
Keith

DX'd with Severe Pancolitis June 2005
Previous Meds: 5ASAs, Predisone, 6-MP. Remicade, Humira, Simponi, Cimzia & Cyclosporine
3-step J-Pouch surgery: 2013 & 2014

Current Condition: Chronic Pouchitis -- Not as bad as I thought it would be
Current Meds: Stelara
Total Hip Replacement: 12/16 -- Thanks Prednisone!!!
www.healingwell.com/community/default.aspx?f=38&m=3755226
profile picture
notsosicklygirl
Forum Moderator
Joined : Dec 2008
Posts : 17160
Posted 1/25/2019 10:25 AM (GMT -7)
Woogy, I am sorry. At least now you know what you're dealing with and you can treat it. I am sure the inflammation is causing all the trips. You will probably go much less once you're treated. Hopefully it's short-term, like Keith said, a lot of people suffer from pouchitis, it doesn't mean it will continue to occur.

I keep seeing quite a few people suffering with pouchitis after surgery. it makes me sad. I wish everyone could do well and get their lives back quickly!
Moderator: UC
Currently: no meds 6/15 Step 1 J-pouch Surgery Complete 9/15 Step 2 Complete 11/15 Step 3 Complete
From Sickly to UC Free

Give a man a fish and he will eat for a day; teach a man to fish and he will eat for a lifetime; give a man religion and he will die praying for a fish
profile picture
Woogy
Regular Member
Joined : Apr 2004
Posts : 180
Posted 1/25/2019 11:06 AM (GMT -7)
So since I'm going to be taking an antibiotic, should I be taking probiotics too? I haven't taken any probiotics since I had the surgeries.
~Diagnosed in 2001 - Left Side UC
-Vit D, Vit C, Multivitamin

Previously tried colozal, lialda, asipro, sulfasalazine, rowasa, canasa, hydrocortisone enemas, Imuran and Humira - they all failed or made symptoms worse.

**Step 1 of 3 - Surgery on 1/29/18**
**Step 2 of 3 - Surgery on 8/6/18**
**Step 3 of 3 - Surgery on 11/12/18**
profile picture
ks1905
Veteran Member
Joined : Sep 2005
Posts : 5418
Posted 1/25/2019 11:24 AM (GMT -7)
Yes, take probiotics but not at the same time that you take the antibiotic because it will just kill the probiotic (So space them out).

My GI recommends Florastor and Culturelle. Florastor is a yeast so I think it lasts a little better against the antibiotics.
Keith

DX'd with Severe Pancolitis June 2005
Previous Meds: 5ASAs, Predisone, 6-MP. Remicade, Humira, Simponi, Cimzia & Cyclosporine
3-step J-Pouch surgery: 2013 & 2014

Current Condition: Chronic Pouchitis -- Not as bad as I thought it would be
Current Meds: Stelara
Total Hip Replacement: 12/16 -- Thanks Prednisone!!!
www.healingwell.com/community/default.aspx?f=38&m=3755226
profile picture
Woogy
Regular Member
Joined : Apr 2004
Posts : 180
Posted 1/25/2019 2:42 PM (GMT -7)
Thanks KS. I have Florastor and another probiotic (that I can't recall the name of) so I will try those. How long of a time span do they need to be taken apart from the antibiotic? So I will probably take my antibiotic at night before bed since they usually make me feel sick to my stomach - so if I take the probiotic in the afternoon, would that work? I hope this works quickly.

The doc actually prescribed suppositories too but doesn't want me to start those yet. They said to try the antibiotic first and if that doesn't work in a few days then add in the suppositories. Not sure why they don't do both right away. Oh well. I'm keeping my fingers crossed. LOL
~Diagnosed in 2001 - Left Side UC
-Vit D, Vit C, Multivitamin

Previously tried colozal, lialda, asipro, sulfasalazine, rowasa, canasa, hydrocortisone enemas, Imuran and Humira - they all failed or made symptoms worse.

**Step 1 of 3 - Surgery on 1/29/18**
**Step 2 of 3 - Surgery on 8/6/18**
**Step 3 of 3 - Surgery on 11/12/18**
profile picture
ks1905
Veteran Member
Joined : Sep 2005
Posts : 5418
Posted 1/25/2019 4:09 PM (GMT -7)
That should be good spacing.

What antibiotic(s) did you get?
Keith

DX'd with Severe Pancolitis June 2005
Previous Meds: 5ASAs, Predisone, 6-MP. Remicade, Humira, Simponi, Cimzia & Cyclosporine
3-step J-Pouch surgery: 2013 & 2014

Current Condition: Chronic Pouchitis -- Not as bad as I thought it would be
Current Meds: Stelara
Total Hip Replacement: 12/16 -- Thanks Prednisone!!!
www.healingwell.com/community/default.aspx?f=38&m=3755226
profile picture
Woogy
Regular Member
Joined : Apr 2004
Posts : 180
Posted 1/27/2019 1:16 PM (GMT -7)
Doc gave me Cipro. But it's a 30 day supply. I thought it's normally 2 weeks?? But I'm already feeling better and only had to get up one time last night in a span of 7 hrs. Man was that nice!!! lol I no longer have that feeling of pressure going on and now it actually feels like I can empty my pouch fully. I actually feel "normal" finally. I'm going to touch base with my doc tomorrow and see if and when I should start the suppositories.
~Diagnosed in 2001 - Left Side UC
-Vit D, Vit C, Multivitamin

Previously tried colozal, lialda, asipro, sulfasalazine, rowasa, canasa, hydrocortisone enemas, Imuran and Humira - they all failed or made symptoms worse.

**Step 1 of 3 - Surgery on 1/29/18**
**Step 2 of 3 - Surgery on 8/6/18**
**Step 3 of 3 - Surgery on 11/12/18**
profile picture
3timechamp
Veteran Member
Joined : Oct 2009
Posts : 1316
Posted 1/27/2019 1:52 PM (GMT -7)
Woogy my fellow 2018 surgery mate,i hope you and Valli can get some peace with cuff/pouch issues.Between your Dr and the great people here you will get to that peaceful life we rarely had during UC days.Good Luck my friend
profile picture
ks1905
Veteran Member
Joined : Sep 2005
Posts : 5418
Posted 1/27/2019 2:03 PM (GMT -7)
You stay on it until you don’t need it. Your doctor probably just saved you a co-pay if you needed to continue it.

You probably want to stay on it for 10-14 days and at that point you try to get off of the Cipro.

Are you taking it once or twice a day?
Keith

DX'd with Severe Pancolitis June 2005
Previous Meds: 5ASAs, Predisone, 6-MP. Remicade, Humira, Simponi, Cimzia & Cyclosporine
3-step J-Pouch surgery: 2013 & 2014

Current Condition: Chronic Pouchitis -- Not as bad as I thought it would be
Current Meds: Stelara
Total Hip Replacement: 12/16 -- Thanks Prednisone!!!
www.healingwell.com/community/default.aspx?f=38&m=3755226
profile picture
songlady
Veteran Member
Joined : Aug 2009
Posts : 3730
Posted 1/27/2019 2:42 PM (GMT -7)
Hi all!
I've been MIA. So this post will meander a bit.

Hubby and I took a road trip to see family- 825 miles each way. The good news is: I did it! and lived to tell about it - lol! I had some white-knuckle discomfort on the way (see below) and had a tour of the restrooms in the town we visited, but this is my first trip in almost 1 1/2 years (I wasn't up to traveling during chemo) and it can be counted as a victory. We may do the trip again in 6 weeks for a significant family birthday!

I'd had a prescheduled appointment with the surgeon the day before we left. He made sure I was stocked up on Cipro and Flagyl just in case. Good thing, because before we even left home I started with enormous, ENORMOUS amounts of gas and incredible gas pains. I toughed that out for about 4 days until I hit the meds. Doc had suggested I try just the Cipro, since Flagyl had caused me nausea. The Cipro helped.

I know, KS, you advise the full course of it, but for now I am trying to play it as per the doc - so I stopped the Cipro after about 2 1/2 days.

All was fine for about 5 days and it started up again. (We were back home by then.) As soon as I swallowed one mouthful at a meal, the other end would react (good ol' gastrocolic reflex!) and I'd have to RUN to the bathroom. Urgency, pain if I didn't run. After one memorable evening leading a committee meeting at work, in which I had to run to the bathroom twice in an hour, and such urgency I soiled undies 3 times, I restarted.

I talked to the nurse, who basically calmed me down and gave me permission to be a little "creative" in seeing what works for me. So, as of 2 days ago I am trying Cipro (500 mg twice a day, with breakfast and dinner as per Doc) and I am doing one Flagyl per day, at breakfast. So far no nausea. I am doing Probiotics halfway through the day (or at bedtime, if I forget during the day.)

The amount I am seeing in BMs hasn't decreased much, but the number of trips has.From 12 to 6, with usually once at night, depending on food/schedule of food.

I have a CT scan schedule in a few weeks for the oncologist, and the surgeon wants to check it to see if I have a hernia. He said the abdominal wall was very weak, and I definitely have a bulge. But otherwise, I feel optimistic!

I just caught up on this thread. Hope everyone is doing OK this weekend.
Age 62. Diagnosed UP 1983, UC 1986
Step One surgery on 12/28/17.
Surgery: planned. The colon cancer they found: a surprise.
Prior meds: sulfasalizine, Asacol, Delzicol, Lialda,
6 MP, Humira, Metamucil
two hips replaced thanks to pred.
6 months of chemo finished 7/9/18
Reversal to J pouch 8/9/18
profile picture
Woogy
Regular Member
Joined : Apr 2004
Posts : 180
Posted 1/27/2019 2:53 PM (GMT -7)
KS - I'm taking the Cipro twice a day, with breakfast and before bed.

Song - glad you got to go on your trip but sad you're not doing very good with your pouch. hopefully our issues are resolved soon.
~Diagnosed in 2001 - Left Side UC
-Vit D, Vit C, Multivitamin

Previously tried colozal, lialda, asipro, sulfasalazine, rowasa, canasa, hydrocortisone enemas, Imuran and Humira - they all failed or made symptoms worse.

**Step 1 of 3 - Surgery on 1/29/18**
**Step 2 of 3 - Surgery on 8/6/18**
**Step 3 of 3 - Surgery on 11/12/18**
profile picture
notsosicklygirl
Forum Moderator
Joined : Dec 2008
Posts : 17160
Posted 1/27/2019 5:18 PM (GMT -7)
Thanks for the update Song. I am sorry you've been up and down, but it's good to hear you're finding ways to get your pouch to function how you want it to. I guess there is a tough period following takedown, and it's for everyone, but it's especially hard when there's an issue and you don't know whether it's normal 'adjustment', or something more. Keith has also mentioned pepto being helpful for his pouch. I know for me, I ned to take zofran with a lot of meds in order to tolerate them. Might not be a bad idea to have some on hand.
Moderator: UC
Currently: no meds 6/15 Step 1 J-pouch Surgery Complete 9/15 Step 2 Complete 11/15 Step 3 Complete
From Sickly to UC Free

Give a man a fish and he will eat for a day; teach a man to fish and he will eat for a lifetime; give a man religion and he will die praying for a fish
profile picture
songlady
Veteran Member
Joined : Aug 2009
Posts : 3730
Posted 1/28/2019 6:52 AM (GMT -7)
When I saw the surgeon just before my trip, he told me to make sure I also took Pepto with me. So I did. I've taken it a few times, but.... I am not altogether clear on what it is supposed to do?

I do have a stash of Compazine and Zofran from when I was on chemo, but I had not really thought of taking them! lol However, with one Flagyl a day rather than two (and always taking it with a meal) I've had no queasiness issues this go-round.

In general, I am feeling great! Since late Fall we've hosted a few group suppers for friends and last night's was the first time I haven't had discomfort/need to run to the bathroom repeatedly, and I ate like I normally would have before all this happened! And I woke up with energy this morning! I really feel like I've turned a corner, if I can just figure out how to stay this way! smile
Age 62. Diagnosed UP 1983, UC 1986
Step One surgery on 12/28/17.
Surgery: planned. The colon cancer they found: a surprise.
Prior meds: sulfasalizine, Asacol, Delzicol, Lialda,
6 MP, Humira, Metamucil
two hips replaced thanks to pred.
6 months of chemo finished 7/9/18
Reversal to J pouch 8/9/18
profile picture
ks1905
Veteran Member
Joined : Sep 2005
Posts : 5418
Posted 1/28/2019 11:12 AM (GMT -7)

songlady said...
When I saw the surgeon just before my trip, he told me to make sure I also took Pepto with me. So I did. I've taken it a few times, but.... I am not altogether clear on what it is supposed to do?

Pepto helps me with the gas, bloating and diarrhea. It only works sometimes for me and not all the time. Mostly the gas.

I haven't needed it since I started Stelara.
Keith

DX'd with Severe Pancolitis June 2005
Previous Meds: 5ASAs, Predisone, 6-MP. Remicade, Humira, Simponi, Cimzia & Cyclosporine
3-step J-Pouch surgery: 2013 & 2014

Current Condition: Chronic Pouchitis -- Not as bad as I thought it would be
Current Meds: Stelara
Total Hip Replacement: 12/16 -- Thanks Prednisone!!!
www.healingwell.com/community/default.aspx?f=38&m=3755226
profile picture
ks1905
Veteran Member
Joined : Sep 2005
Posts : 5418
Posted 2/1/2019 10:37 AM (GMT -7)

Woogy said...
KS - I'm taking the Cipro twice a day, with breakfast and before bed.

Song - glad you got to go on your trip but sad you're not doing very good with your pouch. hopefully our issues are resolved soon.

Woogy and Songlady,

How are you both doing with your pouchitis?
Keith

DX'd with Severe Pancolitis June 2005
Previous Meds: 5ASAs, Predisone, 6-MP. Remicade, Humira, Simponi, Cimzia & Cyclosporine
3-step J-Pouch surgery: 2013 & 2014

Current Condition: Chronic Pouchitis -- Not as bad as I thought it would be
Current Meds: Stelara
Total Hip Replacement: 12/16 -- Thanks Prednisone!!!
www.healingwell.com/community/default.aspx?f=38&m=3755226
profile picture
songlady
Veteran Member
Joined : Aug 2009
Posts : 3730
Posted 2/2/2019 8:36 AM (GMT -7)
I am doing well! Even with the bumps in the road, I would not at all say (to respond to Woogy) that I am not doing well with my pouch. I sure had some issues with the ostomy, with a horribly painful hernia and the pyroderma gangrenosum, and this is better than that!

I think, nssg, that I have been particularly grumpy about the frequency because my UC had not a bad flare in years. So unlike those whose UC is out of control prior to surgery, I was feeling well - and this has been sort of a surprise. I hadn't had a situation of 8+ bathroom trips per day for.... more than 30 years?

The Docs told me recovery would take 6 months for the acute recovery and 1 year for something like 98% recovery, and I think I am on track. (I am almost 6 months post-reversal.) Being an incurable optimist (lol) I had assumed I'd beat everyone's expectations and do better than their predictions. But, realistically, given my age and having gone through 6 months of chemo, which obviously affected all my cells, I think I'm doing fine.

I've been back at work since about 3 weeks post-reversal. At first I was p/t, but now I'm really back to it, which includes not only days but several evenings a week. My BMs tend to cluster in the evenings, so sometimes that's difficult.

But, your question, Keith: I have been great since the last round of Cipro. I started with just that (per Dr) but then added Flagyl for the last few days. Have been off them So far so good. Stupid thing, I ate acorn squash a few days ago, as I finished my meds, and squash has always caused me issues (but I LOVE squash!) ... so I had some increased urgency/frequency until that got through me.

My 6 month post-chemo CT scan is this week. Then the following week I do extensive bloods and see the oncologist. I hope the pouchitis issue is calm for a while! And that all the oncology stuff is clear.
Age 62. Diagnosed UP 1983, UC 1986
Step One surgery on 12/28/17.
Surgery: planned. The colon cancer they found: a surprise.
Prior meds: sulfasalizine, Asacol, Delzicol, Lialda,
6 MP, Humira, Metamucil
two hips replaced thanks to pred.
6 months of chemo finished 7/9/18
Reversal to J pouch 8/9/18
profile picture
3timechamp
Veteran Member
Joined : Oct 2009
Posts : 1316
Posted 2/2/2019 8:49 AM (GMT -7)
Song why Cipro and Flagyl??? I know on some post u were concerned about urgency
profile picture
songlady
Veteran Member
Joined : Aug 2009
Posts : 3730
Posted 2/2/2019 9:15 AM (GMT -7)
Champ, the surgeon suspected pouchitis. Told me to try them and discontinue after 48 hours if they didn't help. They did help - within about 3 hours I felt better! But the Flagyl tends to make me nauseated, so Doc suggested I try just the Cipro. It didn't do as much, so I added in 1/2 the Flagyl he'd prescribed. I was able to do that few several days before the nausea hit! And so far all seems fine.
What's the news on the hernia? How is the pouch life otherwise?
Age 62. Diagnosed UP 1983, UC 1986
Step One surgery on 12/28/17.
Surgery: planned. The colon cancer they found: a surprise.
Prior meds: sulfasalizine, Asacol, Delzicol, Lialda,
6 MP, Humira, Metamucil
two hips replaced thanks to pred.
6 months of chemo finished 7/9/18
Reversal to J pouch 8/9/18
profile picture
3timechamp
Veteran Member
Joined : Oct 2009
Posts : 1316
Posted 2/2/2019 11:04 AM (GMT -7)
Pouch has been great. On days I work I usually don't have BM til later in day. Don't eat much breakfast on days I work. Very light lunch. I eat good amount at dinner time so I go 2-3-4x at night. On days I'm home prob 1-2x during day. As far as hernia I had choice of Feb 7 or March 7. I chose March bc I need buyout $ from divorce so I can feel comfortable taking off at least 2 weeks. Only problem is not sure if divorce will be final by then. Lawyers do procrastinate. Other issue is im slow right now with work so Friend is involved in big project (10 year-$600 million)in Ronkonkoma here on Long Island and told me in December he could keep me and my guys busy all winter. BUT they have problems keeping new constructed buildings heated(it has been very cold here) enough for us to work. THAT SUCKS. Only worked one day in January. So hopeing that turns around soon. Want my guys to work there during and after surgery so at least they have income. Happy you seem better. I'm thinking give me one year since last surgery. If no complications then I'm OK. Hernia can be fixed. Just bought Velcro piece to put around abdomen to keep hernia from getting any bigger til surgery. Will wear it after surgery also. Here's hopeing you end up with no pouchitis. And we hope Valli gets some answers with her issues. Be well
✚ New Topic ✚ Reply
1234567891011

Forum Information

Currently it is Saturday, February 16, 2019 8:58 AM (GMT -7)
There are a total of 3,041,905 posts in 332,385 threads.
View Active Topics

Who's Online

This forum has 163234 registered members. Please welcome our newest member, jeams joy.
170 Guest(s), 6 Registered Member(s) are currently online.  Details
Iluvgrub, Lapis_29, project, Girlie, mumandason, FLMomOf7




HealingWell

About Us  |   Advertise  |   Subscribe  |   Privacy & Disclaimer
Connect With Us
FacebookFacebook TwitterTwitter PinterestPinterest LinkedInLinkedIn
© 1997-2019 HealingWell.com LLC All Rights Reserved.