I am doing well! Even with the bumps in the road, I would not at all say (to respond to Woogy) that I am not doing well with my pouch. I sure had some issues with the ostomy, with a horribly painful hernia and the pyroderma gangrenosum, and this is better than that!
I think, nssg, that I have been particularly grumpy about the frequency because my UC had not a bad flare in years. So unlike those whose UC is out of control prior to surgery, I was feeling well - and this has been sort of a surprise. I hadn't had a situation of 8+ bathroom trips per day for.... more than 30 years?
The Docs told me recovery would take 6 months for the acute recovery and 1 year for something like 98% recovery, and I think I am on track. (I am almost 6 months post-reversal.) Being an incurable optimist (lol) I had assumed I'd beat everyone's expectations and do better than their predictions. But, realistically, given my age and having gone through 6 months of chemo, which obviously affected all my cells, I think I'm doing fine.
I've been back at work since about 3 weeks post-reversal. At first I was p/t, but now I'm really back to it, which includes not only days but several evenings a week. My BMs tend to cluster in the evenings, so sometimes that's difficult.
But, your question, Keith: I have been great since the last round of Cipro. I started with just that (per Dr) but then added Flagyl for the last few days. Have been off them So far so good. Stupid thing, I ate acorn squash a few days ago, as I finished my meds, and squash has always caused me issues (but I LOVE squash!) ... so I had some increased urgency/frequency until that got through me.
My 6 month post-chemo CT scan is this week. Then the following week I do extensive bloods and see the oncologist. I hope the pouchitis issue is calm for a while! And that all the oncology stuff is clear.
I think you are doing amazingly well for everything you have gone through plus 6 months of chemo has to affect everything I woukd give yourself a big pat on the back .
And squash doesn’t sit well with me since all this has started . There are certain foods you try and then say to yourself “ nope never again “ that may be one .
Keep us updated on your up and coming tests.
48 year old female mother of 4
UC since 1993 remission off and on
The last flare-up was 2008 till 2009 remission till June 2017
Hospitalized November 2017 for 5 weeks
Anemia 4 blood transfusions in hospital
prednisone, asacol, pentasa,encort enemas, steriod enemas, hurmia all failed
Dec/17 Total colectomy
March/2018 2nd surgery J pouch
Take down 3rd surgery Aug/ 18
Sept- present cuffitis