Vacation was wonderful, we visited St Lucia on a cruise this summer and went back for a few weeks because I literally fell in love with the island and people. If you ever get a chance to visit stay at the Royal resort and spa it has the best beach on the island and to me the best staff which went out of their way to always check in on me and make sure I was OK after running to the bathroom.
I learned the hard way last year to relax and take life easy stress will kill you or at least take your colon...
so enjoy life travel and take life a day at a time. Wish I did all that before...
Well I learned alcohol and my new pouch do not want to work together ( rude pouch ) lol. I would only have a few drinks a day most of time just pina colada not sure if it was the sweet sugar or coconut cream but I would often run to the bathroom and just make it in time. Our room was located just steps away from the beach which made life easy.
I wish I could say I'm doing well like a few of you already, but my bathroom trips have not decreased at all. Today I had homemade pancakes around 10 am with blueberries yes I know blueberries are off the table right now but there were only a small handful of them anyways about
4 hours later did I pay for that I must have gone at lease 5 times in over an hour and still am having a off day. If I had to guess the amount of trips today I would say an easy 15-18 and bad cramps. The butt burn is unreal even on holidays I had to jump into an Epson salt bath a few times a day, I found the ocean stung my butt a lot... but that didn't stop me from going in , I'm a beach kind of girl so the ocean is my best friend butt burn and all.
I have a scope coming up the first week of December I hope she can find out what is going on...I need to know if this is normal or just an adjustment stage.
How is everyone else ???
47 year old female mother of 4
UC since 1993 remission off and on
The last flare-up was 2008 till 2009 then remission till June 2017
Hospitalized November for 5 weeks removed my colon Dec 12
Anemia 4 blood transfusions in those 5 weeks.
prednisone, asacol, pentasa,encort enemas, steriod enemas, hurmia all failed
Proctitis Jan 2018
March 19 2nd surgery J pouch
Next surgery late Aug 8 takedown