Hi guys well I actually feel like there is hope. I had my gastro appointment today and after hearing all my symptoms he believes I have pouchitis. Pretty sure we all agreed I had that months ago but my surgeon didn't. What gets me so upset is all the pain and suffering I have dealt with these last few months and hearing my surgeon say she thinks " its normal" all my symptoms . The gastro said "surgeons are only good at cutting you
open" and I couldn't agree more.
By the end of my appointment I burst out crying saying " I felt like someone was finally in my corner and it was nice to have his positive outlook not just negative ones " like I received from my surgeon .I told him I would read all your comments on this site about
how all the other J pouches are happy with their pouch and I would sit at home crying reading it thinking my decision to have the pouch was the worst thing that has ever happened. I just want to feel normal again. I want to sleep more then 2 hours at a time I truly want my back door area to heal, It would be nice to be pain free and not suffer with gas cramps all day long.
And I never want to hear a doctor say BS like my surgeon said to me 2 weeks ago " well you can get a reversal " who says that to a someone that just under went 3 surgeries in 9 months. So its goodbye to my surgeon. I am going to fight for this pouch not give up.
The gastro is starting me on 500 mg Metronidazole and 500 mg Ciprofloxacin for 14 days and he wants to do a pouch exam asap I have an appointment booked for next Wednesday. He said there are a few different meds we can try if that doesn't work. I walked out of his room with HOPE for the first time in a long time.
Thank you guys for listening to me rant all the time. Its nice to know you get it.
3timechamp when is your surgery?