I don't know the exact amount of cuff I have left my doc just used fingers to show and it was around 1" or so that he left. He said it was very very minimal.
I was experiencing a lot of itching, some discomfort and a little bit of urgency. Also had some bleeding so we did the procedure and I've been okay since. I get up once a night most nights but that's no biggie.
It's so nice to hear you're doing so much better! I am happy for you. I am usually up once in the night too, but it really depends what I eat and when. I don't use bowel slowers either, there are probably things I could do to avoid the nighttime trip, but I get up often regardless, I am a very light sleeper, so I am used to it.NSSG, and this is maybe a good note for all new jpouchers, for me it depends a lot on what I eat. usually I eat a cheese, grit, meats casserole for breakfast, and a chicken cobb salad for lunch. If I do that I go maybe once around 8am (12 hours after dinner), and then most days I don't have to go until around 4:30-5:30 which is incredible for me.
If I eat carbs, and bigger meals, I go a little more often. It seems that the more carbs and fried type food I eat, the more liquid my stool is, and the more often I have to go. Seems counter intuitive but it works for me. Yesterday I went 3 times during the day and once at night with that sort of meal plan (Pork chops, sweet potato gnocchi and green beans for dinner).
It definitely started settling for me around 1.5 years after surgery to where it really started improving.