I'm having surgery

I am with Keith. This itching people have should really be checked out. there are creams that can get it under control really quickly, but they are RX, and you need to get it diagnosed. It's probably yeast.

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Moderator: UC
Currently: no meds 6/15 Step 1 J-pouch Surgery Complete 9/15 Step 2 Complete 11/15 Step 3 Complete
From Sickly to UC Free
Give a man a fish and he will eat for a day; teach a man to fish and he will eat for a lifetime; give a man religion and he will die praying for a fish

18 more days to go.

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UC since 2002
Colectomy 11/8/2018

They won’t let you have your own medication. It’s a controlled environment. You can ask them to continue to give you that medication. They will work all of this with you during the presurgery or intake meeting.

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Keith

DX'd with Severe Pancolitis June 2005
Previous Meds: 5ASAs, Predisone, 6-MP. Remicade, Humira, Simponi, Cimzia & Cyclosporine
3-step J-Pouch surgery: 2013 & 2014

Current Condition: Chronic Pouchitis -- Not as bad as I thought it would be
Current Meds: Stelara
Total Hip Replacement: 12/16 -- Thanks Prednisone!!!
www.healingwell.com/community/default.aspx?f=38&m=3755226

Very best of luck and happiness to you! I hope all goes super smoothly and life becomes GREAT again soon.

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diagnosed in 1997. meds: triamterene HCTZ, remicade infusions-8 wk intervals, Lialda 1200mg 1x a day,Hyoscyamine sulfate odt 0.125 4-6 hours as needed,Omeprazole 40mg 1 capsule a day,Latanoprost op 0.005% 1 drop each eye, Potassium 90mg 1 x a day

So in one of my hospitalizations I brought my prednisone. I didn't tell them I had it. Well their was this nurse that was so awful to me, would say I didn't need to be there and that I was fine.i wasn't in a GI ward. This was a long term care ward with very old people who'd fallen and broke their pelvic area or hips. They didn't have any experience with a patient like me. Well, I told my GI what she said and he got angry and yelled at her and told her my colon was severely inflamed and at risk of bursting. That should have straightened her out, but she just got nastier at me for getting her in trouble. Well I had it one day and took prednisone in pill form rather than the IV form. When they came to give me prednisone via IV I told them I had already taken the pill form. The one nurse kinda got angry at me, the mean nurse just stood there with a scowl. My GI came in and asked me why i did that, I told him that nurse was still saying I didn't belong there and she was talking about sending me home. She did say all that. I didn't see that nurse anywhere for the rest of the time I was there which was another week and half. So yeah, sometimes bringing your pills can work in your favour if your nurse isn't nice to you. 😉

I'd certainly talk with the head-nurse of that ward/unit shortly after the incident if you feel that you aren't getting the care you need. Work your way up the hierarchy if needed. Better to react sooner than put it off for the quickest fix and punitive action on that nurse (harder when waiting weeks, months, or years later).

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Moderator Ulcerative Colitis
John, 40, UC Proctosigmoiditis
Rx: Remicade @5mgs/kg/6wks; daily 75mgs 6MP, 4.8g generic-Lialda, and rowasa
You never really appreciate what you've got until it's gone. Toilet paper is a good example.

Ask anyone (another nurse, an orderly, a doctor, etc.) within that area and they'd know. So, you don't have to ask the problem nurse (can I see your manager?), if you want to be more meek/less rude to her directly. The head nurse's job is to manage that ward/unit and would also be responsible for reprimanding/disciplining those directly under her/his management. So, I'd say it is the quickest turnaround to get problems resolved.

I think you’ll be happy with the results of the surgery. It is a big step but if it goes well, and for a lot of people it does, it’s a life-changer. May have missed it, but when do you go?

I’ve had 6 stays at hospitals, I always made sure to take the floor/nursing supervisor’s business card. They usually introduce themselves during the first 48 hours that you are there and make occasional follow up visits to check on your care.

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Keith

DX'd with Severe Pancolitis June 2005
Previous Meds: 5ASAs, Predisone, 6-MP. Remicade, Humira, Simponi, Cimzia & Cyclosporine
3-step J-Pouch surgery: 2013 & 2014

Current Condition: Chronic Pouchitis -- Not as bad as I thought it would be
Current Meds: Stelara
Total Hip Replacement: 12/16 -- Thanks Prednisone!!!
www.healingwell.com/community/default.aspx?f=38&m=3755226

_{Wishing you a successful surgery. First one is the hardest the next two are a bit easier. If you have no quality of life with your UC then getting it done is the right choice. I had no control over my BM I would have bloody accidents every single time I left the house and they were not small ones. Needed blood transfusion one after the other towards the end and spent 5 weeks in the hospital trying to get me in remission. If I didn't have all the accidents and if I wasn't losing blood I would have fought for my colon . All the specialist and surgeons wanted it done asap I was the only one fighting to save my colon. Cant say I didn't try,,,,I wanted no regrets afterwards.
Its a major life style changer, but if you are in that much pain with your UC having the surgeries is worth it.
Looking back to the spring and summer having a stoma wasn't that bad at all, I was pain free for the most part just a rash and a few burst bags. It really does get easier with the ileostomy bag.
Let us know how you are feeling after your surgery}

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47 year old female mother of 4
UC since 1993 remission off and on
The last flare-up was 2008 till 2009 then remission till June 2017
Hospitalized November for 5 weeks removed my colon Dec 12
Anemia 4 blood transfusions in those 5 weeks.
prednisone, asacol, pentasa,encort enemas, steriod enemas, hurmia all failed
Proctitis Jan 2018
March 19 2nd surgery J pouch
Next surgery late Aug 8 takedown

CyHaskett, soaps and perfumes? Tell me more.

So I'm currently taking the xeljanz. I still have urgency and accidents (I'm still wearing diapers) but I often have formed bms. Not sure how that's possible.

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UC since 2002
Colectomy 11/8/2018

Got marked today, going in tomorrow. Can't wait for this to be over. Sixteen years of UC.

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UC since 2002
Colectomy 11/8/2018