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I'm having surgery

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Ulcerative Colitis
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Andreita
Veteran Member
Joined : Aug 2011
Posts : 3837
Posted 10/20/2018 11:39 AM (GMT -8)
The surgeon is actually leaving part of my rectum and I expect to poop mucus after surgery. He said he will remove the rest of the rectum in step 2.
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notsosicklygirl
Forum Moderator
Joined : Dec 2008
Posts : 17869
Posted 10/20/2018 1:56 PM (GMT -8)
I am with Keith. This itching people have should really be checked out. there are creams that can get it under control really quickly, but they are RX, and you need to get it diagnosed. It's probably yeast.
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notsosicklygirl
Forum Moderator
Joined : Dec 2008
Posts : 17869
Posted 10/20/2018 1:57 PM (GMT -8)

Andrina said...
The surgeon is actually leaving part of my rectum and I expect to poop mucus after surgery. He said he will remove the rest of the rectum in step 2.

That's normal with step 1. Hopefully everything is calm between the steps. People typically go tot he bathroom in the am and empty whatever is in the rectum. I know DJ had really bad proctitis between though, and it caused her some urgency and discomfort. Mine was okay.
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Andreita
Veteran Member
Joined : Aug 2011
Posts : 3837
Posted 10/21/2018 2:58 PM (GMT -8)
18 more days to go.
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Andreita
Veteran Member
Joined : Aug 2011
Posts : 3837
Posted 10/28/2018 3:31 PM (GMT -8)
They take my medication when I go to the hospital. What can I do about it? I don't want them to take my medication.
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ks1905
Veteran Member
Joined : Sep 2005
Posts : 6329
Posted 10/28/2018 3:45 PM (GMT -8)
They won’t let you have your own medication. It’s a controlled environment. You can ask them to continue to give you that medication. They will work all of this with you during the presurgery or intake meeting.
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Andreita
Veteran Member
Joined : Aug 2011
Posts : 3837
Posted 10/28/2018 3:54 PM (GMT -8)
I don't agree with it. I will just leave my meds at home
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geezernow
Regular Member
Joined : Nov 2017
Posts : 309
Posted 10/28/2018 4:26 PM (GMT -8)
Very best of luck and happiness to you! I hope all goes super smoothly and life becomes GREAT again soon.
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jujub
Elite Member
Joined : Mar 2003
Posts : 10424
Posted 10/28/2018 6:49 PM (GMT -8)
Good luck, Andrina. I know this is a decision not taken lightly. I hope you are as happy with the results as everyone else who opted for surgery.
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Riseagainstbadmusic
Regular Member
Joined : Oct 2018
Posts : 27
Posted 10/28/2018 10:19 PM (GMT -8)
So in one of my hospitalizations I brought my prednisone. I didn't tell them I had it. Well their was this nurse that was so awful to me, would say I didn't need to be there and that I was fine.i wasn't in a GI ward. This was a long term care ward with very old people who'd fallen and broke their pelvic area or hips. They didn't have any experience with a patient like me. Well, I told my GI what she said and he got angry and yelled at her and told her my colon was severely inflamed and at risk of bursting. That should have straightened her out, but she just got nastier at me for getting her in trouble. Well I had it one day and took prednisone in pill form rather than the IV form. When they came to give me prednisone via IV I told them I had already taken the pill form. The one nurse kinda got angry at me, the mean nurse just stood there with a scowl. My GI came in and asked me why i did that, I told him that nurse was still saying I didn't belong there and she was talking about sending me home. She did say all that. I didn't see that nurse anywhere for the rest of the time I was there which was another week and half. So yeah, sometimes bringing your pills can work in your favour if your nurse isn't nice to you. 😉
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Andreita
Veteran Member
Joined : Aug 2011
Posts : 3837
Posted 10/29/2018 3:04 AM (GMT -8)
jujub I know I will be happier. When I achieved remission five years ago with azathioprine I told my GI that the next time I flare I want my colon out. He disagreed and still does but I'm not changing my mind. I look forward to my surgery.

Music, thanks for sharing your story. I'm glad she left you alone afterwards. I truly believe she chose the wrong profession. I wonder if there is a way to report nurses like her? I wanted to report a male nurse and I still have his name and hospital he worked at because I felt abused by him. I didn't know how to go about it and I let it go. But what if it happens again, what are my options?
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iPoop
Forum Moderator
Joined : Aug 2012
Posts : 16404
Posted 10/29/2018 6:38 AM (GMT -8)
I'd certainly talk with the head-nurse of that ward/unit shortly after the incident if you feel that you aren't getting the care you need. Work your way up the hierarchy if needed. Better to react sooner than put it off for the quickest fix and punitive action on that nurse (harder when waiting weeks, months, or years later).
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Andreita
Veteran Member
Joined : Aug 2011
Posts : 3837
Posted 10/29/2018 6:57 AM (GMT -8)
How do I know who the head nurse is? Do I ask for their "supervisor"? haha
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iPoop
Forum Moderator
Joined : Aug 2012
Posts : 16404
Posted 10/29/2018 7:08 AM (GMT -8)
Ask anyone (another nurse, an orderly, a doctor, etc.) within that area and they'd know. So, you don't have to ask the problem nurse (can I see your manager?), if you want to be more meek/less rude to her directly. The head nurse's job is to manage that ward/unit and would also be responsible for reprimanding/disciplining those directly under her/his management. So, I'd say it is the quickest turnaround to get problems resolved.
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Andreita
Veteran Member
Joined : Aug 2011
Posts : 3837
Posted 10/29/2018 7:12 AM (GMT -8)
I don't know why I didn't think of that.
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Doggiedo
Veteran Member
Joined : Jan 2014
Posts : 779
Posted 10/29/2018 7:35 AM (GMT -8)
I think you’ll be happy with the results of the surgery. It is a big step but if it goes well, and for a lot of people it does, it’s a life-changer. May have missed it, but when do you go?
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Andreita
Veteran Member
Joined : Aug 2011
Posts : 3837
Posted 10/29/2018 7:39 AM (GMT -8)
November 8th
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ks1905
Veteran Member
Joined : Sep 2005
Posts : 6329
Posted 10/29/2018 9:01 AM (GMT -8)
I’ve had 6 stays at hospitals, I always made sure to take the floor/nursing supervisor’s business card. They usually introduce themselves during the first 48 hours that you are there and make occasional follow up visits to check on your care.
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3timechamp
Veteran Member
Joined : Oct 2009
Posts : 1784
Posted 10/29/2018 5:29 PM (GMT -8)
Don't go into surgery thinking your going to have a nurse problem. I had none during my stay for 3 surgerys. They come by to give u your meds and that's it. Most work 12 hour shifts(which I think is brutal) and are pleasant people Relax,think positive. You'll be fine. Your main objective is to rest and walk,rest and walk.And I don't advise taking Meds into hospital.
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valli1234
Regular Member
Joined : Aug 2017
Posts : 452
Posted 10/30/2018 4:25 AM (GMT -8)
Wishing you a successful surgery. First one is the hardest the next two are a bit easier. If you have no quality of life with your UC then getting it done is the right choice. I had no control over my BM I would have bloody accidents every single time I left the house and they were not small ones. Needed blood transfusion one after the other towards the end and spent 5 weeks in the hospital trying to get me in remission. If I didn't have all the accidents and if I wasn't losing blood I would have fought for my colon . All the specialist and surgeons wanted it done asap I was the only one fighting to save my colon. Cant say I didn't try,,,,I wanted no regrets afterwards.
Its a major life style changer, but if you are in that much pain with your UC having the surgeries is worth it.
Looking back to the spring and summer having a stoma wasn't that bad at all, I was pain free for the most part just a rash and a few burst bags. It really does get easier with the ileostomy bag.
Let us know how you are feeling after your surgery smile
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CyHaskett
New Member
Joined : Oct 2018
Posts : 2
Posted 10/31/2018 4:33 AM (GMT -8)
I have had my Jpouch for going on 20 years and there isn't much that I haven't experienced. From eating different kinds of foods, gas elimination, pouchitis, to anal stricture and dialation from it surgically and personally. If you have a unanswered question don't hesitate to ask. Ps. I agree with the above posts, the surgery was really the best thing for me too. I fought U.C. for over a dozen years unsuccessfully, I just knew that I would find what was causing my issues. Soaps, perfumes, foods, surgery was the cure for me. Good luck
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Andreita
Veteran Member
Joined : Aug 2011
Posts : 3837
Posted 10/31/2018 5:05 PM (GMT -8)
CyHaskett, soaps and perfumes? Tell me more.

So I'm currently taking the xeljanz. I still have urgency and accidents (I'm still wearing diapers) but I often have formed bms. Not sure how that's possible.
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maggiesfour
New Member
Joined : Nov 2012
Posts : 7
Posted 11/1/2018 10:03 PM (GMT -8)
My darling Adrina...

I am so excited for you. I cannot wait for all of us here to be able to help you, cheer you on, and encourage you. This will be amazing!

From my experiences, and the experiences that I have gone through with my UC and other autoimmune related illnesses, my daughter, the nurse, just got certified to be a Wound Care specialist, in addition to her being a Geriatric Nurse.

She loves it! Her first hand knowledge in working with me and some of my friends has been an incredible education for her - and she is such a valuable asset at her hospital, for her patients and for me!! HAHA! Isn't that cool?

Best to you my dear friend...and tons of love your way!
DJ

Post Edited (maggiesfour) : 11/2/2018 12:09:33 AM (GMT-6)

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Andreita
Veteran Member
Joined : Aug 2011
Posts : 3837
Posted 11/7/2018 4:00 PM (GMT -8)
Got marked today, going in tomorrow. Can't wait for this to be over. Sixteen years of UC.
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3timechamp
Veteran Member
Joined : Oct 2009
Posts : 1784
Posted 11/7/2018 4:08 PM (GMT -8)
Good luck. You'll be fine. I had the dreaded UC 32 yrs. I'm grateful this surgery is available. It wasn't when I got UC in 85. I'm sure u have a great surgeon. Now u just rest. Walk and rest. Don't overdo walking but try to get up and get muscles/lungs moving. Let us know how u make out. Give us as many updates as possible
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