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Top 3 supplements for UC

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Ulcerative Colitis
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csantamaria
Regular Member
Joined : Jul 2013
Posts : 163
Posted 10/22/2018 6:28 PM (GMT -6)
ok so like many of you I take what seems to be a million sups, the money is no issue, but which sups are your top 3 for keeping colitis in check and or stopping a flare?

heres what I take, im on predisone now battling a flare it is improving, and im on simponi which they called today and found almost no levels left so I gotta do that 2x a month now which is fine.

sups: dgl licorice, glutamine when I remember on empty stomach 10g, boswellia, turmeric, vit D when I remember it, digestive enzymes every meal, ACV, probiotics , multi vitamin, whey isolate no lactose zinc carnosine


thanks all
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iPoop
Forum Moderator
Joined : Aug 2012
Posts : 16211
Posted 10/23/2018 6:12 AM (GMT -6)
Do you know as a fact that each of those supplements actually help you? Have you tried stopping one for a few weeks and see if you get worse? A lot to take and you should make sure they're effective.
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csantamaria
Regular Member
Joined : Jul 2013
Posts : 163
Posted 10/23/2018 11:19 AM (GMT -6)
I gotta be honest I have no idea what’s working if anything
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Sinmiedo
Regular Member
Joined : Jan 2018
Posts : 79
Posted 10/23/2018 8:01 PM (GMT -6)
My top three are clove oil, mk677 and thc/cbd candies. Fiber is the only other thing I use consistently and I will be trialling Qing Dai soon. I made sure each item addresses very different mechanisms.
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eekseel
Regular Member
Joined : Apr 2017
Posts : 119
Posted 10/23/2018 8:57 PM (GMT -6)

iPoop said...
Do you know as a fact that each of those supplements actually help you? Have you tried stopping one for a few weeks and see if you get worse? A lot to take and you should make sure they're effective.

That was my experience with meds. They kept piling on and in the end none of them really made a difference. Only speaking for myself here.
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eekseel
Regular Member
Joined : Apr 2017
Posts : 119
Posted 10/23/2018 9:00 PM (GMT -6)
Qing Dai, Sulforaphane (brocolli sprout juice), a good multivitamin.

I think the winning recipe for me has been addressing A) local inflammation B) systemic inflammation C) basic nutritional needs.
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MarkWithIBD
Regular Member
Joined : Jun 2018
Posts : 442
Posted 10/23/2018 9:35 PM (GMT -6)
^ Interesting you mention sulforaphane, I'm interested in trying that.

My top 3 supplements right now are: DHEA, pregnenolone, and L-tyrosine. They've changed my life.
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csantamaria
Regular Member
Joined : Jul 2013
Posts : 163
Posted 10/24/2018 5:53 AM (GMT -6)
Sinmiedo- mk677

Wow i just got done trying that for about 2 weeks I’m not sure if that was helping someone posted that it speeds up transit time
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Sinmiedo
Regular Member
Joined : Jan 2018
Posts : 79
Posted 10/24/2018 4:27 PM (GMT -6)
Mk677 does speed up gastric emptying time specifically but that is minor in the grand scheme. It's a ghrelin mimetic which causes it to increase growth hormone secretion as well as reduce multiple inflammatory interleukins and a handful of other positive effects. This reduces inflammation and increases intestinal healing directly. You can search the forum for my ghrelin post if you want to see what lead me there. It increased the type of foods I can eat pretty greatly. It does make me very hungry though. It's upstream enough to be sustainable too.
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boris_badenof
Regular Member
Joined : Jul 2006
Posts : 182
Posted 10/24/2018 5:06 PM (GMT -6)
I did some research on MK677 (ibutamoren) a while back and it is something I wanted to try to put on some muscle and weight. But it is an anabolic, so MK677 should be avoided if you have or had cancer, which ruled it out for me.
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csantamaria
Regular Member
Joined : Jul 2013
Posts : 163
Posted 10/24/2018 5:27 PM (GMT -6)
Sinmiedo-wow thanks for sharing man, I will begin again tonight . I’m actually a professional bodybuilder that is almost retired every time I compete I go in remission then when I go into offseason every year a flare starts and I’m on prednisone most of the year until it calms down. I’m on 30 mg now and tapering
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Sinmiedo
Regular Member
Joined : Jan 2018
Posts : 79
Posted 10/24/2018 9:29 PM (GMT -6)
I would definitely make sure anyone thinking about it look into it as much as possible prior to chasing it down though. It's not actually a steroid although it gets sold at many of the same places. It does however reliably increase growth hormone which is good for healing and for bodybuilders. This however does come with increased risks of specific types of cancer. Then there's also the fact some may not like the increased water retention or hunger leading to possible weight gain.
In my case, I'm hoping to gain weight and I accepted the risks involved weighed against the plausible benefits. I personally think it's an impressive chemical but I wouldn't want anyone to go after it without being well versed on the risk versus rewards.
I'm going to post another study under the Ghrelin post so it will be easier to find and the study itself also is pretty in depth and valuable.
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csantamaria
Regular Member
Joined : Jul 2013
Posts : 163
Posted 10/24/2018 9:42 PM (GMT -6)
Ok excellent!
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ewafromwarsaw
Veteran Member
Joined : Jun 2013
Posts : 1408
Posted 10/26/2018 3:59 PM (GMT -6)
Do you think that sodium butyrate is always the same (no matter which brand we choose) or it can differ in quality? Does it come in powder form as well?
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HardEvidence
Regular Member
Joined : Apr 2018
Posts : 71
Posted 10/27/2018 10:15 AM (GMT -6)
I always struggle with supplements. Hard to know what's really making a difference and helping to keep things calm, especially in remission. My biggest takeaway from all the reading I'm doing on UC is it is such a personalized disease...what works for one won't necessarily translate to others. Means worth trying a number of suggestions and seeing how it suits you. The one I am looking to try next is CBL...the benefits seem to go beyond just UC health. But need to find a good quality brand to order. Let's see. Otherwise I'm currently taking:
- Bone-Up (thought I'd help with Calcium deficiency from all the steroids), plus Magnesium to help absorb.
- Vit D - for some reason 5000 iu upsets me, so only taking 1000 per day for the moment.
- Isatis Cooling - pill form (similar to Qing Dia) - Seems to help with my GERD.
- Others - Vit E, PepZinGI, Lycopene
- Oil of Oregano and Curcumin - recently added.

Would love feedback from anyone on these.
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ewafromwarsaw
Veteran Member
Joined : Jun 2013
Posts : 1408
Posted 10/28/2018 6:04 AM (GMT -6)
Sulforaphane sounds interesting, I've checked it up and found this: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3951821/ on the properties of the shepherd's purse. I've read that this herb is very good for diarrhea and intestinal bleeding.
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csantamaria
Regular Member
Joined : Jul 2013
Posts : 163
Posted 10/28/2018 9:12 PM (GMT -6)
I posted a while ago about this I ordered bpc 157 in rats it’s shown to heal colitis anyone tried it?
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ewafromwarsaw
Veteran Member
Joined : Jun 2013
Posts : 1408
Posted 10/29/2018 4:39 AM (GMT -6)
bpc 157? I'm just reading about it on the Polish fora and it sounds incredibly interesting, the only thing that worries me is that it is mostly used in the context of body building and I have the size 34 and don't want to change it for a sumo fighter sexy appeal smile
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boris_badenof
Regular Member
Joined : Jul 2006
Posts : 182
Posted 10/29/2018 5:46 AM (GMT -6)
I have tried BPC 157 from the patent holder so I know it is the real deal. It has helped me with soft tissue injuries like a torn meniscus, thru subcutaneous injection. I have used it orally too, and it did have somewhat of a soothing effect at times like l-glutamine does for me, but it did not "cure" me. I still have to live my "bubble boy existence" of preparing my own food fresh every meal at home that is safe for me and take my supplements.
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csantamaria
Regular Member
Joined : Jul 2013
Posts : 163
Posted 10/29/2018 6:20 AM (GMT -6)
That’s some good info thanks for sharing!
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ewafromwarsaw
Veteran Member
Joined : Jun 2013
Posts : 1408
Posted 10/29/2018 12:34 PM (GMT -6)
that's good to hear Boris! maybe pbc hasn't cured you but I'm sure something will turn up soon that will be a cure for all of us. Is pbc157 something new on the market? strange, I dig into the uc subject almost every day and It's only today that I have read about it in Csantamaria's post.
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boris_badenof
Regular Member
Joined : Jul 2006
Posts : 182
Posted 10/29/2018 12:40 PM (GMT -6)
Hi Ewa,

BPC 157 is a peptide that has an underground following, but it is not something a doctor would know about so no surprise you have not heard of it. There is a lot of discussion about BPC 157 on sites LongeCity and many bodybuilding forums that you can read up on.
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ewafromwarsaw
Veteran Member
Joined : Jun 2013
Posts : 1408
Posted 10/29/2018 5:04 PM (GMT -6)
thanks for the info, I'll have to do some more research, I tend to buy too many supplements which eventually I don't use smile
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iPoop
Forum Moderator
Joined : Aug 2012
Posts : 16211
Posted 10/30/2018 6:14 AM (GMT -6)
"I tend to buy too many supplements which eventually I don't use." That's my point exactly, closely vet these things thoroughly. There might be a few gems in there (some do swear by it) but the majority of supplements are going to be crap and ineffective for you. So vet them yourself, make sure you see improvements, and do not take a supplement long-term just because others with UC do, or just because others had luck with it (results are NOT easily repeatable among individuals). As the popularity of a supplement is pretty much irrelevant, only your results matter!
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ewafromwarsaw
Veteran Member
Joined : Jun 2013
Posts : 1408
Posted 11/1/2018 12:11 PM (GMT -6)
iPoop, I'm perfectly aware of it but when I hear about some "miracle drug", I switch off logical thinking and convince myself that I should give it a try. There's even an idiom in Polish that describes this way of thinking, it says that a person gets a "monkey's brain". It's very much unjust because after so many failures, an average monkey would be much more intelligent than me smile
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