Thought I would post an update:
On Halloween I went from feeling pretty normal with crazy bleeding to running to the bathroom 5 times, blood, mucus, skinny stool, etc. Luckily my doctor was able to see me on 11/1 and he took a look, said I have some serious bleeding in the rectum, but things didn’t look bad near the end of what he could see. He put me on a low dose of 20 mg a day of pred (boo) because I am already maxed out on lialda and using colocort nightly. So for the last week I have seen blood reduce by 90%, frequency is back to more normal 1-2 a day and the night time blood/ mucus that I had for a few days wasn’t there Tuesday or Wednesday night. Last time I was on pred (3 years ago) it took almost 10 days to see any change so this has me floored that it worked so quickly. Here’s hoping I get off pred in 6 weeks and this flare up doesn’t come back. Side note, sfRowasa is now going to be available in December, but I’m not holding my breath because a month ago I was told it would be available now.
43 yrs old diagnosed with proctosigmoiditis 6/13/13
meds- 4 Lialda (sfRowasa when needed)- supplements: probiotics (1 VSL3 cap, 1 culturelle and 1 reuteri) 1 gram krill Oil, 1TBSP p. seed powder, 2 g curcumin. Allegra for seasonal allergies as needed. Allergic to sulfites. Currently gluten/dairy free (except yogurt) and eating lots of RS.
Post Edited (momto2boys) : 11/8/2018 5:33:43 AM (GMT-7)