Posted 11/11/2018 7:43 PM (GMT -6)
I have been diagnosed with steroid myopathy caused by the length of time and current high dosage of prednisone that I'm currently on. I've been on the drug for 4 years now, 3 years for Polymyalgia Rheumatica. Finally got down to 4mg hoping to finally get off and had to increase again to 60mg for UC flare - was still searching for maintenance drug that worked. Finally on Remicade which seems to be working and tapering the pred, down to 30 now, hope to drop to 25 this week. But I'm experience severe shaking, muscle mass loss, and weakness that's extremely debilitating due to the pred. Started physical therapy which helps, but wondered if anyone else has gone through this and when it will go away. Do I have to wait until I am off the pred totally or will it subside as I taper?