Your story reminds me much like mine!
I had gone through the whole gambit of drugs (as in my signature), including 3 different biologics. By the third (Humira), nothing got worse, but nothing improved. I was using the washroom, on average, 12-15 times a day. There wasn't any blood per se, but the urgency is what got to me. I lost almost all control of my bowels; I was within 5 seconds of a washroom and at times, still couldn't make it. That and the lovely anxiety that comes with not being able to ever leave the sight of a washroom! Anyways, I figured after putting up with this for nearly 2 years, and with biologics/steroids not doing much for me anymore, it was time to seriously consider surgery.
I opted for having a proctocolectomy with permanent ileostomy, and my life is honestly close to what it was prior to my diagnosis. Of course, everyone's body will likely respond to surgery differently. As well, I did have complications for a month after surgery, but in the end, things have been fantastic.
You're already doing the right thing by educating yourself on your available options.
: UC (April, 2014), small pulmonari emboli (Dec, 2016)Surgery
: Proctocolectomy with Permanent Ileostomy - 05/24/18Current meds
: PropranololPast/failed meds
: Humira, Remicade, Entyvio, Azathioprine, Prednisone, Cortiment, Salofolk enemas, Pentasa, Dicyclomine, Xarelto, Omeprazole, Pantoprazole, Mirtazipine, Maxeran, CBD Oil