Your experience and understanding of what UC is and how your meds work will help. Identify what your issues are and realise it's actually grieving of what's lost and what has changed.
Distractions and hobbies are good, but if you are doing them to numb out the reality, they serve a poor purpose.
Reality of it is what it is firstly, and you are allowed to be angry, fretful, depressed, etc.
Talk.....see a counsellor if need be.
Experience and knowledge, options that are available, don't believe that it's your fault and don't believe you will cure it. Experiment, but be realistic and not overly optimistic with each. Know that symptoms vary as you heal and flare. Know you will flare. It took me 3 years to learn how to use my meds and what my symptoms meant.
Ask questions. Ask lots of questions!
Make the rectal med regimen your best friend. White knuckle it through the first few minutes....it does improve.
Learn the why.... and again.....find options.
Do not ignore your symptoms or keep raising the bar of your tolerance to those symptoms or lowering the bar to acceptance of those symptoms. We have seen extreme here, and there are varied experiences in which you will be able to connect. The ride will be tough at times.....
Stay connected, and if you need to vent....do so. Never belittle your symptoms to those of others who are worse.
Life always gets in the way, and no one is without issues....no matter how well they hide them or wish them away.
*Heather* I give suggestions, do with them what you will.
Status: ...Asacol 3 @ 2x daily; Salofalk enema @ 3rd night (nightly/ flares, tapered/maintenance)
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol 20mg as needed; Zantac 150mg; Pulmicort/Oxeze/Airomir (asthma); Effexor XR 75mg (depression); Rosuvastatin 10mg (cholesterol); Telemesartin 80mg (BP)
~vitamins/minerals/supplements; Probiotics....(RenewLife Ultimate Flora Critical Care + Genuine Health Advanced Gut Health 50 billion @ bedtime)
~Metamucil capsules 6 @ 2x daily with meals; Vitamin D 4500 IU
~URSO 500mg @ 2x daily for Primary Biliary Cholangitis
~Sjogren's (secondary)...symtomatic treatment
"TREAT (FROM)BOTH ENDS" worth it !!
Post Edited (quincy) : 12/3/2018 12:14:53 PM (GMT-7)