Start with your GI’s office and see who they recommend. I’d contact your local CCFA chapter and ask them. Take a look at jpouch.org and ask for recommendations. You’re probably going to end up at a Teaching/University hospital.
Your son is going to feel so much better and his QOL is going to improve. I felt so much better after surgery.
DX'd with Severe Pancolitis June 2005
Previous Meds: 5ASAs, Predisone, 6-MP. Remicade, Humira, Simponi, Cimzia & Cyclosporine
3-step J-Pouch surgery: 2013 & 2014
Current Condition: Chronic Pouchitis -- Not as bad as I thought it would be
Current Meds: Stelara
Total Hip Replacement: 12/16 -- Thanks Prednisone!!!www.healingwell.com/community/default.aspx?f=38&m=3755226