SfRowasa update- News in the last post

I know a few of us here use sfRowasa and it hasn't been available for a long time. Today I called the number on an old box to get an update and received some "hopeful" news. Apparently since Meda was bought by Mylan, they put a hold on making it. However Mylan has released a new NDC for the drug, which the rep told me is because they are in the process of getting it ready for release (supposedly December 21, nothing like waiting 6 months for a drug!). So the new NDC, in case you want it is 0037-0022-07. I called my pharmacist and they also said this was a very good sign. Fingers crossed we might see this med again by 2019!

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43 yrs old diagnosed with proctosigmoiditis 6/13/13
meds- 4 Lialda (sfRowasa when needed)- supplements: probiotics (1 VSL3 cap, 1 culturelle and 1 reuteri) 1 gram krill Oil, 1TBSP p. seed powder, 2 g curcumin. Allegra for seasonal allergies as needed. Allergic to sulfites. Currently gluten/dairy free (except yogurt) and eating lots of RS.

Post Edited (momto2boys) : 1/10/2019 8:11:41 AM (GMT-7)

I know, it drives me crazy and this current craptastic flare up I am experienceing is thanks to being without rowasa for so long. The person I spoke with was actually nice and said it was a good sign that there is a new NDC, she was the first person I have ever spoken with that said more than the party line. Not that I believe the release date, but I feel a bit more positive this time around.

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43 yrs old diagnosed with proctosigmoiditis 6/13/13
meds- 4 Lialda (sfRowasa when needed)- supplements: probiotics (1 VSL3 cap, 1 culturelle and 1 reuteri) 1 gram krill Oil, 1TBSP p. seed powder, 2 g curcumin. Allegra for seasonal allergies as needed. Allergic to sulfites. Currently gluten/dairy free (except yogurt) and eating lots of RS.

I would guess the 14’s and 28’s would end as such! I should have asked but didn’t think of it. It is so expensive, I pay $1542 for a 28 day supply before we max out. We hit our out of pocket max for the rest of the year, and I would love to get a “free” box before year end if possible!

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43 yrs old diagnosed with proctosigmoiditis 6/13/13
meds- 4 Lialda (sfRowasa when needed)- supplements: probiotics (1 VSL3 cap, 1 culturelle and 1 reuteri) 1 gram krill Oil, 1TBSP p. seed powder, 2 g curcumin. Allegra for seasonal allergies as needed. Allergic to sulfites. Currently gluten/dairy free (except yogurt) and eating lots of RS.

UPDATE:

I spoke with a Mylan rep this morning and they claim that sfRowasa is now available for distribution. Call your pharmacy and let them know that they should be able to order it some time soon. Fingers crossed the person I spoke with wasn't wrong!

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43 yrs old diagnosed with proctosigmoiditis 6/13/13
meds- 4 Lialda (sfRowasa when needed)- supplements: probiotics (1 VSL3 cap, 1 culturelle and 1 reuteri) 1 gram krill Oil, 1TBSP p. seed powder, 2 g curcumin. Allegra for seasonal allergies as needed. Allergic to sulfites. Currently gluten/dairy free (except yogurt) and eating lots of RS.

Wow, your pharmacy is quick! I was told I had to call on the 14th and they would process it then.

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43 yrs old diagnosed with proctosigmoiditis 6/13/13
meds- 4 Lialda (sfRowasa when needed)- supplements: probiotics (1 VSL3 cap, 1 culturelle and 1 reuteri) 1 gram krill Oil, 1TBSP p. seed powder, 2 g curcumin. Allegra for seasonal allergies as needed. Allergic to sulfites. Currently gluten/dairy free (except yogurt) and eating lots of RS.

I got a call yesterday from my small, local pharmacy. They will have it Tuesday! My pharmacist had to use the new NDC, that's funny!

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43 yrs old diagnosed with proctosigmoiditis 6/13/13
meds- 4 Lialda (sfRowasa when needed)- supplements: probiotics (1 VSL3 cap, 1 culturelle and 1 reuteri) 1 gram krill Oil, 1TBSP p. seed powder, 2 g curcumin. Allegra for seasonal allergies as needed. Allergic to sulfites. Currently gluten/dairy free (except yogurt) and eating lots of RS.