I didn't mind my ostomy a ton. At least i wasn't worried about
pooping my pants all the time. It gave me freedom and confidence. I was able to take trips, work, enjoy life. Something I was unable to do living with severe UC.
I have a jpouch now, and I live very normally. I rarely go to the doctor, haven't been to a GI since surgery. Haven't been to my surgeon in a few years. Only went to my yearly in the past few years... I don't take a single drug, haven't been readmitted and haven't gotten sick at all or dehydrated. I used to get colds constantly when I was living with UC and on meds. I also haven't had a single accident or leak.
I do however think I have been very lucky, at the same time, I think there are a lot of people who have good results, they just do not hang around and post here. Most move on with life. Yes, I go more than normal people, i usually get up once in the night at 4 or so. I went 2x today, but other days I may go 6x or 8x. I really don't keep a count. Going is like urinating. You go in, release, wipe, and done! I can do both at the same time, and be in and out in no time.
I don't want to paint a picture like it's better than a colon, because it's not. I'd love to go 1x a day, but i don't want to live worried about
drugs and insurance. I don't want to worry about
the expense, the impact of the drugs, or the accidents.
xy, do you have experience with an ostomy? Was it a loop or an end? Loops are terrible - mine was anyway, some people have an okay experience with it.
Moderator: UCCurrently: no meds 6/15 Step 1 J-pouch Surgery Complete 9/15 Step 2 Complete 11/15 Step 3 Complete
From Sickly to UC Free
Give a man a fish and he will eat for a day; teach a man to fish and he will eat for a lifetime; give a man religion and he will die praying for a fish
Post Edited (notsosicklygirl) : 12/13/2018 7:30:22 PM (GMT-7)