Posted 12/16/2018 10:28 AM (GMT -6)
I am 4 months post J pouch reversal surgery. It's been hard to figure out whether my sometime symptoms have been normal for healing, or whether there has been pouchitis involved. I was doing OK, and by Month 3, the # of bms per day was decreasing (5/6 per 24 hours.) Then I began to notice urgency and frequency when required to participate in work-related (and therefore, jitter-provoking) meals. I chalked it up to emotions.
And I had started to notice a slight increase in urgency/frequency soon after Thanksgiving, and attributed that to the rich foods, although I had tried to eat carefully.
Then my mother died somewhat unexpectedly, and as I was with family over the next week, and eating out a lot, the urgency/frequency increased a bit more. Not as much as what I read about with some folks, but I was up to 12/13 bms per 24 hour period. I lived 35 years with UC, before my surgery, and I've only now had my first-ever accidents - in these past few weeks!
So I thought to myself: "SELF (I thought): all through UC you downplayed your symptoms and ended up under-treated! (as some of you,who have known me a long time, might remember.) Call the surgeon!" But with all the busy stuff involved after a death, and the fact that pre-Christmas is an especially busy time for me at work, I did not think I could work in an appointment....
But after a family dinner out in which I needed to run for the bathroom 3 times, I called. Talked to him. He said: could be emotions, could be a virus (there is one going around) could be pouchitis. He prescribed cipro and flagyl. Told me to take it for a few days and stop it if there was no improvement. Also told me to stop it if there was improvement and the issue was solved, that unlike antibiotics for, say, an ear infection, I did not need to take a full course.
I took it and within hours felt relief! I've taken the meds for 36 hours and so far am down to 4 bms/24 hours! And the slight discomfort, which I had chalked up to the healing process, is gone. I finally feel that "new lease on life" that the J pouch has brought to so many!
I had responded beautifully to VSL years ago, so I just ordered Visbiome in hopes of warding off future pouchitis. And I'll likely continue the antibx for another day or two, just to make sure all is OK.
It's been so difficult to tell the difference between normal healing, with its inevitable blips, and what was actually an issue! And when I've read of people with pouchitis having LOTS of accidents and going 20x a day, my issues seemed minor. But I'm glad I took action! Thank you all, and particularly iPoop and NSSG , for helping me learn more about myself and my sometimes misguided patience with all this!