Hello!

Hi Beth!!! Happy new year to you and Beth ☺

Sad to hear of your Tophi Gout diagnosis...wow, never heard of it before...
Looks terribly painful. Has the allopurinol lessen the crystal deposits as well and keep them controlled?

Were all polyps you had fully benign?

Welcome back...

q

---

*Heather* I give suggestions, do with them what you will.
Status: ...Asacol 3 @ 2x daily; Salofalk enema @ 3rd night (nightly/ flares, tapered/maintenance)
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol 20mg as needed; Zantac 150mg; Pulmicort/Oxeze/Airomir (asthma); Effexor XR 75mg (depression); Rosuvastatin 10mg (cholesterol); Telemesartin 80mg (BP)
~vitamins/minerals/supplements; Probiotics....(RenewLife Ultimate Flora Critical Care + Genuine Health Advanced Gut Health 50 billion @ bedtime)
~Metamucil capsules 6 @ 2x daily with meals; Vitamin D 4500 IU
~URSO 500mg @ 2x daily for Primary Biliary Cholangitis
~Sjogren's (secondary)...symtomatic treatment
"TREAT (FROM)BOTH ENDS" worth it !!

Hello Beth

I have read your posts in the past and it gave me hope for Remicade which I have been on since June. Can you tell me about your experience regarding GI issues over the last 7-8 years?

TY

Hi Q!

Yes it has greatly reduced the crystal deposits in my hand that I can see. My joints feel better too. Seeing the deposits is what finally got me the dx, but by that time I had just figured it out a week before my rheumatology appt because it gave me more symptoms to Google.

Yes, the polyps were benign but there was something the Doc said. I will check my report.

Hi John!

Hi Countess,

Besides a small flare in my first trimester in 2013, which they moved my remicade from 8 weeks to 6 weeks, I have been doing great (knock on wood). I have been under immense pressure/stress at work since Sept so I think that may be giving me a bit looser bms. I love getting my remicade, I go next Wednesday and take some benadryl and get a nice nap in a recliner with heated blankets. I'd be happy to answer any questions you have. I am at the lowest dose of 500mg per Kg. I hope its helping you!

All my best,
Beth

Post Edited (Beth75) : 1/2/2019 5:32:13 PM (GMT-7)

Hi Q,

I found my report. I had a benign adenomatous polyp removed, they want to know if its sporadic or if I have dysplasia (not likely) so they will repeat the colonoscopy again this year instead of every two years.

fx!

Beth

I think everything came back ok.

---

UC Pancolitis: dx'd 2000; Remicade since 2011, every 6 weeks. Kidney Disease (Minimal Change Disease): dx'd 2007 caused by 5ASA's (thank you sulfsalazine, lialda and asacol). Tophi Gout. Current meds: Remicade, lisinopril, diovan and allopurinol.