I've had the dreaded chronic pouchitis since the first day; antibiotics helped but I finally moved on to Stelara when there were ulcers in my j-pouch and above the pouch in my small intestine (the inlet to my pouch) during my previous scope. I've been on Stelara for almost 3 years.
So I went for a routine scope yesterday and I expected to have ulcers or inflammation in my pouch. To my surprise, my GI said that I had no inflammation or ulcers and in fact that I had the best looking pouch that he has ever seen.
He said that in any j-pouch that you look at under a scope you will see very minimal inflammation(even in healthy pouches) -- I had no inflammation whatsoever. He was shocked and said that he should have taken more photos (in retrospect).
I wouldn't have believed all of this except that I have photos when I had ulcers in my pouch and yesterday's photos.
Thanks Stelara. He wants me to continue on Stelara.
DX'd with Severe Pancolitis June 2005
Previous Meds: 5ASAs, Predisone, 6-MP. Remicade, Humira, Simponi, Cimzia & Cyclosporine
3-step J-Pouch surgery: 2013 & 2014
Current Condition: Chronic Pouchitis -- Not as bad as I thought it would be
Current Meds: Stelara
Total Hip Replacement: 12/16 -- Thanks Prednisone!!!www.healingwell.com/community/default.aspx?f=38&m=3755226
Post Edited (ks1905) : 1/11/2019 9:12:29 AM (GMT-7)