Just heard back from my doctor. We are going with Imuran for now, fingers crossed. It will be a slower road with the pred, but I feel a little better knowing that I still have Hurmia in my back pocket should I need it. Thanks for all your advice!
I met with a new GI today and really like him. He was knowledgeable, listened to my concerns, discussed everything with me as if I was an intelligent person who understood UC well, and also told me that he is available for his patients 24 hours a day, no matter what.
(I may have cried when he said that)
So, when I first went in he looked at my scope report from last week and said he thinks I should just try to slower taper the prednisone again, my scope looked great. Then we discussed the dose of prednisone that I was on when the scope was done and I gave him pictures from my 2016 scope when I was feeling well but still had inflammation and he said, “oh, we should reevaluate.”
He gave me 3 choices, but with his preferred choice as well.
1- try and taper 5 mg every 7-10 days. If things go bad, jump to option 3.
2- add Imuran or 6-mp to the mix, slow the taper, but also because of my low weight and the dosing of pills, getting the right dose will be trickier and it still may not work.
3- start Humira, my insurance company seems to like it over remi for some reason and they will approve it first. Also possibly add 6-mp to keep from building antibodies, but does could be lower than with just Imuran or 6 -mp alone. This was his choice.
Lastly, sfRowasa is here! I picked up my script
today so now we have to balance tapering the colocort and the prednisone, hooray for me.
Currently on 35 mg of prednisone, 4 generic lialda, and now half a colocort and half and sfRowasa nightly.
43 yrs old diagnosed with proctosigmoiditis 6/13/13
meds- 4 Lialda (sfRowasa when needed)- supplements: probiotics (1 VSL3 cap, 1 culturelle and 1 reuteri) 1 gram krill Oil, 1TBSP p. seed powder, 2 g curcumin. Allegra for seasonal allergies as needed. Allergic to sulfites. Currently gluten/dairy free (except yogurt) and eating lots of RS.
Post Edited (momto2boys) : 1/17/2019 2:26:40 PM (GMT-7)