Certainly, jumping the mental-hurdle of a surgery is the hardest part by far. In the end, you have to be pragmatic and separate the emotion from the decision. Layout the cards in front of you, as far as what options you have left to tryout. Determine the pros and cons of each choice, and it's time-cost. Then take a calendar and block out the amount of time you are willing to schedule for getting well. Yes, you can try 5 more treatment paths one-at-a-time, and wait one month for each to work, and you're quickly at almost 1/2 a year suffering and watching life pass you by. As devil's-advocate, what's the time allotment for a surgery and recovery. Which gives you the clearest odds of success and back to a good quality of life.
Often, I find that fear is what drives us away from certain treatments paths (whether that is a biologic or a surgery). The best way to overcome fear is to dispel it with knowledge and question your assumptions/fears. To use an analogy, it's 2:00am in the morning and a loud, repeating noise awakens you from your sleep. You can let you mind run wild about
nightmarish creatures or home-intruders who might be causing said sound. Alternatively, you can turn on the outside and inside lights and find out what is actually causing it. That noise, might simply be an unlatched gate that the wind is banging and not the fantastic beast your runaway mind has conjured up.
The next treatment option is just like the unlatched gate. Yes there are risks to taking biologics or undergoing a surgery, everyone acknowledges that fact. What is important for you to do, is determine what are the actual odds of the most concerning to you things of happening? It's all about
defining actual risks verses benefits. We all know that getting into an automobile could potentially kill us, however, it isn't something that stops us from using a car as the risk is pretty low. The reality is that with a biologic or surgery, it is really the same exact thing (rare adverse reactions with very low odds of occurrence). It's due diligence to know what's possible and how likely it is. However, you shouldn't avoid treatment and a likely better quality of life, due to a minuscule risk (as we tend to do when fear is running our decisions).
I don't know if you actually need a surgery or not, however, knowledge and dispelling fears is a good direction to go in regardless. I tend to be analytical and research all paths out ahead of time. It's like a game of chess, the best players know what to do 10 or more turns in advance, and have several strategies in-mind for various moves their opponent might make. UC and chronic illness is no different, and should be exactly the same.
Moderator Ulcerative Colitis
John, 40, UC Proctosigmoiditis
Rx: Remicade @5mgs/kg/6wks; daily 75mgs 6MP, 4.8g generic-Lialda, and rowasaIs it unpatriotic to wipe your bumm with George Washington bills if there's no tp in a stall and you're otherwise in dire-straights? I think George would understand...
Post Edited (iPoop) : 1/22/2019 8:23:33 AM (GMT-7)