Hi folks, wanted to give an update on my IBD-AID/SCD diet and med changes. (I thought I’d post it here to keep it all together.)
This summer went pretty well through July and my colonoscopy, which looked good. Then in August, it all went bananas. I started feeling some real familiar flare signs, really suddenly. No blood, but so much diarrhea, so much cramping. “$&@?” I said, and went to UrgentCare. After we discussed my UC, they gave me a prescript
ion for prednisone and took a stool sample. I went home, got ready to take my meds, and got a call from Urgent Care. “Stop!” They said. “Don’t take the prednisone—you have a parasite.”
Cryptosporidium, to be exact! After that was dealt with, my colon was still affronted/flaring and I needed a course of prednisone to calm it down. that made me feel a bit of a failure, despite the fact that the flare had been caused by the nasty crypto (and would’ve happened with imuran as well as without)—because it wasn’t controllable with diet and mesalamine.
After the pred course completed, I developed some additional extra intestinal manifestations of UC. Added to this were some concurrent major health issues for my son, and our family stress levels went to eleven. So when I followed up with my gastro last week, we discussed all the options, and I decided to go back on imuran and continue parts of the diet. We also decided to try a switch from balsaliside to lialda. (I’ll be searching the forum for discussions about
So, ultimately the IBD-AID diet wasn’t a success for me. I only managed ~ 9 months of pretty good health on it, with colazal as my main medication. I’m sorry that this path isn’t going to work long term for me, but I am happy to be working my way back to less restrictive eating and cooking/baking. (I think if one doesn’t cook or bake, this type of diet will be much harder t do.) i am also hoping for a return to diminished extraintestinal effects.
Sorry for the huge post! I hope that this narrative is helpful to anyone interested in trying the IBD-AID with supervision.
Post Edited (AnnaM) : 11/9/2019 10:30:00 AM (GMT-7)