I had terrible gas as well at first for a few months, luckily it settled down for me after a while (I hope it does for you too).
In terms of butt burn, my surgeon actually told me that all the creams etc. were hurting not helping....with all the creams and the constant baths + more cream, you create a moisture build up that actually breaks down the skin not helps heal it. His suggestion was baby powder to help keep the area dry, which helped tremendously for me. Try that see if it helps....
That happened to me too. I was soaking, and using a handheld bidet, creams, wipes. It made a perfect environment for the breakdown of the fragile skin around my bottom. Though, if you're going a ton, you have to do something!! Sometimes drying helps more than loading up on the cream. Ilex is a cream that creates a barrier - it might help. Everyone is different, once I had to get an Rx cream to calm my bottom because i was using so many creams it caused yeast to flourish. have you tried psyllium husk? I wonder if something like bentyl would help with the spasms? Also, Keith's suggestion of opium tincture. That could really slow you down. Are you doing better today?Ok help me out here I picked up the prednisone Tuesday night and I was going to start wed morning well I started to feel better Tuesday and wed it was a total switch the cramps and spasms were gone still experiencing gas but I can live with that. But the pain was gone till this afternoon
So I thought I don’t want to start it if I don’t have too . Yes I know I waited 2 weeks to get this going and all of a sudden I start feeling more like myself ( normal ) I was going to give it to today to see . But I can tell it was just wishful thinking I tend to have these normal days every few weeks makes me think everything must be settling down then it hits me like a dump truck and guess what the truck was back again . I just took my prednisone now 6 tablets once a day for 2 weeks then decrease by 1 per week. Regarding the opium haven’t tired or heard about
it . I still have my Percocets which I take if needed and that’s only on rough nights . Or nights I want to ignore my boyfriend lol
And regarding the butt burn I have tried the “ not using cream “ and it only ended up burning my butt completely. The problem I think is my turn around for food is sometimes only 4 hours that’s from when I eat till I see it coming out , it’s like it’s still full of acid and it comes out like foam ( sorry for the detail ) where other times it’s pure liquid which is most of the time. I rarely have formed little guys. It’s the foam trips that burn and hurt like hell.
I have been taking pepto bismol all week and I think it may have helped a bit .
I am going to be optimistic and say the prednisone will do the trick. If not I am going back to my surgeon and asking for a dam refund because this sucks lol 😝
48 year old female mother of 4
UC since 1993 remission off and on
The last flare-up was 2008 till 2009 remission till June 2017
Hospitalized November 2017 for 5 weeks
Anemia 4 blood transfusions in hospital
prednisone, asacol, pentasa,encort enemas, steriod enemas, hurmia all failed
Dec/17 Total colectomy
March/2018 2nd surgery J pouch
Take down 3rd surgery Aug/ 18
Sept- present cuffitis