Hi all - Thanks for your well-wishes and thoughts. I feel as if you know me better than the friends I see in person!
I met with the surgeon yesterday. DH and I were very impressed. She imparted a lot of info, but also had it all in a 3 ring binder which she made notes in and presented to me. She is a specialist in breast surgery but used to be a specialist in intestinal disease and colon surgery! So she knew all about UC and J pouches and.... wow!
Bottom line: she says I do not need to worry; I'll be fine. Cure rate is 99%. But there are things I need to do in the meantime. First off, there is another area of calcification which the radiologists have noted for several years and which looks like the benign kind, but before she schedules surgery she wants me to have a biopsy of that, also, just so we know for sure.
We are talking "lumpectomy" most likely in either case (though she may need to amend that idea if the next biopsy comes out as bad.)
The lumpectomy will be about the same experience as having a colonoscopy, (without the clean-out!) she said: 1/2 day at the hospital, "twilight" meds. I will need to do 4-6 weeks of radiation, mornings, 5 days a week. Sigh. No chemo because of the type of cancer. Hooray! (Been there, have the T shirt.) She recommends I take tamoxifen or similar for 5 years after because the cancer is hormone positive. Both the radiation and the pill are to prevent recurrence in EITHER breast (fascinating info to me.)
The cancer is not related to my colon, but rather my age and risk factors (late motherhood, maternal grandmother with breast cancer.) She showed a chart which illustrated % of women and risk by age and said it's roughly the same percentages/ages as men and prostate cancer. (Interesting!)
She said there is no reason to rush; if I wanted to take a planned vacation first or whatever, fine. I'd rather get it over with before summer.
So again, intellectually I feel better and better, but emotionally I still have some PTSD in terms of being a "cancer patient" again, and wondering what plans (work plans, morning meetings, etc) I actually can count on making, say, during the radiation month. I am talking these things out with some appropriate folks.
OH, I am hoping for the "boob chute" thing. It's a new facility, so it'll likely be a new machine. All Yale.
Sisters, get your mammos! I am so lucky to have this detected early!
Ohhh song we all have your back specially the class of 2018 us ” colonless folks” lol will always be here for you xoxo . It all sounds positive from the doctors point of view and finding a doc as a gastro specialist also that’s luck. You have the experience of two docs all rolled out into 1 it seems like you are in capable hands and that has to be reassuring.
I would do it sooner then later. Please keep us posted on any updates . Yes the stress has to be difficult no one can sugar coat that very few people would be unaffected so what your feeling is normal ... scary and unfair ... But give it a few weeks once you start fighting this and winning you will once again be your old self . You will come out even stronger. Do you have family you can count on ?
And your down south correct ?