Hi everyone - OH, Q, so many others...!
valli - wow, sounds like a great trip. I can't imagine that kind of ancient history! How wonderful to see it! Sorry for issues since then. and - my surgeon said that NOT eating would indeed cause excess gas.
Champ - congrats on your son's graduation! and I am glad the hernia repair is healing well. At some point you might meet someone interesting, but.. your comment about
not being sure if you're ready? - I would think you might need a little time to breathe after recent drama in almost every department of your life (health, which affects job; divorce, moving, etc!)
Woogy - how's it going? Sounds like your doc doesn't like to think out of the box, and pouchitis treatments need some creativity.
NSSG - always good to have the input of a "Pouch Mentor!"
After my breast surgery I had a bit of what I assume was pouchitis. Prior to that I'd found a perfect balance of foods, probiotics, a little immodium, some Metamucil - and then of course for surgery I had to stop everything for a day or two. A week after I realized I was going a lot, with urgency, discomfort in lower abdomen, etc... so (per my surgeon) I did 48 hours of Cipro/Flagyl. It fixed my gut, got things re-balanced... but 12 hours after the first dose, my fingers and feet went numb. Darn! The chemo-induced neuropathy had been 75% gone, but now a month after my antibiotic fling I still have more tingling than I did before those few Cipro pills. So I need to get some other option from the surgeon. I'd like to have something on hand for when we go away this summer.
Other than that, no gripes. My colon recheck bloodwork was fine.
DH and I are walking at least 10,000 steps briskly, at least 4 times a week... I've just finished my first week of radiation (5 days a week for just under 4 weeks) and so far it's not a big deal.... and work has been long, stressful hours, but that is starting to improve with the lighter summer schedule.
One of my happiest things is that I have found I can eat tomato-based things with only the slightest burn. I'm going to Italy for 10 days at the end of September, and I do want to enjoy the food!
Age 63. Diagnosed UP 1983, UC 1986
Step One surgery on 12/28/17.
Surgery: planned. The colon cancer they found: a surprise.
Prior meds: sulfasalizine, Asacol, Delzicol, Lialda,
6 MP, Humira, Metamucil
two hips replaced thanks to pred.
6 months of chemo finished 7/9/18
Reversal to J pouch 8/9/18