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Xeljanz

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Ulcerative Colitis
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Posted 4/6/2019 6:35 AM (GMT -7)
Like many others who have gone on the same route as myself starting with Humira followed by Entyvio I have now gone onto Xeljanz.
I have been on it for just under two weeks and seems to be working extremely well for me.
I take a 10mg tablet in a morning followed by another one 12 hrs later.
The results so far have been perfect for me going from 10-12 BMs per day and loose to 1 or 2 BMs per day and perfectly formed stools.
So keeping my fingers crossed that it continues this way as for once in a long time dare I say I feel normal.
Geoff
Posted 4/6/2019 8:23 AM (GMT -7)
Wow that's great!
Posted 4/6/2019 8:36 AM (GMT -7)
That's great news. It's a different mechanism so it's possible the others didn't work for you and xeljanz does. Fingers crossed for continued success!
Moderator: UC
Currently: no meds 6/15 Step 1 J-pouch Surgery Complete 9/15 Step 2 Complete 11/15 Step 3 Complete
From Sickly to UC Free
Give a man a fish and he will eat for a day; teach a man to fish and he will eat for a lifetime; give a man religion and he will die praying for a fish
Posted 4/10/2019 5:33 PM (GMT -7)
I have the same story as you. Been in a flare for 2 years now bouncing from one med to the next. about to start Xeljanz....I really hope this one works. Thank you for your positivity!
Posted 4/11/2019 12:03 AM (GMT -7)
Hi limey, glad you're doing so well!! I am coming up to 12 weeks on xeljanz. Still not remission (as in no symptoms) but having much better quality of life than before I started. Jrreyes good luck! I was flaring for 3 years before xeljanz, it's been the only thing that really helped me.
F36, DX pancolitis 2015
Last remission 2016
(Moderately severe) left-sided colitis since 2018
Have tried nearly all drugs and quack options available; considering surgery
Currently meds: xeljanz + mesalazine
Probiotics: vsl#3 and mutaflor
Stopped due to insufficient response: budesonide, prednisone, 5ASA enemas, azathioprine + allopurinol, infliximab, vedolizumab (entyvio)
Posted 4/11/2019 5:41 AM (GMT -7)
Just an update , things are going well for me on Xeljanz , Bms still around 1 to 3 per day and formed and in myself I am feeling good.
I have had UC for sixteen years and over that period of time I have become careful about what I eat and that continues that way even on Xeljanz , not wanting to rock the boat.
My specialist wants to try reducing my meds to 5 mg twice a day after 2 months to see if it will still hold me.
This is mainly because of my age ( 78 )
Posted 4/11/2019 6:31 AM (GMT -7)
Congrats on the improvements, and feeling better. We've had a number of success stories with xeljanz as more people have tried it, which is encouraging.
Moderator Ulcerative Colitis
John, UC Proctosigmoiditis in Remission
Rx: Remicade @5mgs/kg/6wks; daily 75mgs 6MP, and rowasa
You might have UC... if you take the dog for a walk and you both end up pooping within the bushes.
Posted 4/11/2019 7:32 AM (GMT -7)
I have had success with Xeljanz after failing both Humira and Simponi! Let's hope it stays that way..
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