So why isn’t this working as good as it was when I first started this?
I was asking myself the same question. about
that time, 1.5 years of remission, I flared after some back to back all-nighters for work in Aug/Oct of last year. Previous to that I handled giving my mothers eulogy in July and repeated trips to Oregon plus a hectic work schedule just fine. But it got so bad I had to delay heading back when my father broke his hip. Qing Dai came to the rescue but I also read you must stop after 8 weeks. GI doc said to stick with Entyvio but 3 more trips later and it kept coming back. My father passed in January and 5 weeks later the inflammation was so bad I woke up and realized I was having a life ending heart attack. Total cholesterol was only 93. I had to get into surgery once I confirmed the problem and luckily I was urban and not in the mountains because the widowmaker LAD was over 90% blocked and required a very long stent right thru the first diagonal branch. Many people do not make it to the hospital in time. Two more weeks and it will be fully absorbed into the endothelial layer but 3 more months of DAPT which doubles the chance for GI bleeding.
The doctors all said it was due to my UC inflammation problem.
How am I doing on DAPT ? Funny thing I started seeing the heart surgeons partner, retired from surgery and doing functional medicine. Well I only saw him once and it will be $3,000 in tests I am at least halfway there. They said not to change anything. I had had enough and changed it all. I started Mastic Gum and overnight my flare was vanishing, I am still downing the correct pectin product and avoiding the bad ones.
It seems I was suffering from a pathogen despite all the testing prior to the heart attack and I asked for more during my ICU overnight post-surgery but they dropped the ball and only tested for one thing.
So did h.pylori wind up in my intestines ? Is my stomach fine but the valve just below stuck
open due to h.pylori ? Sure felt like it but all the time I thought it was the ileocecal valve that was stuck
I am not about
to stop downing my morning mix of wheatgrass, psylliums seed powder etc. I am not going stop taking 4 pectin pills before that and every other meal. The last 7 months have been a hell I plan to never return to.
Not sure if I ever need to see the Functional Doc again who was selling me expensive SBI Protect which I never got around to
opening or trying.
Not sure if I should bother to stop Entyvio. Was it doing its job and no match for a pathogen ? I sure bled a lot. Pan-colitis, looked like a murder scene. Never felt one bit better after the infusions once this started. Once the remission failed.
When I talked to Entyvio about
billing and mentioned what happened to me the were more than alarmed.
Cheap products psyllium seed, mastic gum, apple pectin, has done more for me than any of the expensive stuff.
Why on earth does the SCD list Pectin as ILLEGAL ? That and Mastic gum have given me my life back, gaining weight and moving on.