Posted 7/10/2019 9:20 PM (GMT -6)
Hugo, I was just perusing the forum (which I do whenever I start feeling lousy) and saw your post. I think you and i were diagnosed and put on Remicade at roughly the same time in 2017?
I seem to have triggered a flare by “cheating” - eating foods that contain small amounts of dairy. It never seems to be a problem at first and then over the course of a month or two, it makes me absolutely miserable. I’ve just finished a bout of 14 days of constipation, now having tenesmus and bleeding after a day of non-stop pooping, and trying to figure out next steps.
You mentioned that you’re sort of throwing the kitchen sink at this flare. Two questions:
1) are you still on Remicade? Every 8 weeks, 6 or 4? Standard dosage?
2) You mentioned Cortifoam - how long since you started it? It took about 5-6 days the last time I tried it.
3) Have you tried Uceris foam? I’ve also had that same stubborn 4-5 cm for awhile and Remicade healed all but that. We haven’t scoped in about a year, but it seems Entyvio hasn’t healed it completely, either. It’s GOOD on Entyvio - most of the urgency is gone - but when I experiment with food I shouldn’t be eating, the mucus and blood return, then eventually constipation, urgency, tenesmus, etc.