Jocelyn thank you so much again, your post is giving me hope.
My doc is indeed doing additional tests to try to verify cdiff, including the soonest colonoscopy he could schedule me for (in two weeks).
In the meantime my first two weeks of vanco is ending, and while things haven’t gotten worse (bleeding hasn’t returned), I am still getting diarrhea 4-5x/day and I’m exhausted. I’m really hoping that the second round of vanco will do it.
Not gonna lie; the anxiety is almost worse than the symptoms. I feel like I’ll never be able to return to work, I feel like a terrible parent, and I’m afraid that it will never go away or that it is actually a flare that will never go away.
Hoping that the second round will do it...!!
I hope I can be somewhat helpful.
Two and half years ago my doctor diagnosed me with an active flare and C diff. I was going to the bathroom 10+ times a day. I also had crazy abdominal pain that literally would keep me up all night. One of the first things my doctor did was test me for c diff/parasites/etc when all of those came out negative (including the c diff) he decided to do a colonoscopy assuming that it was a flare. When they do colonoscopies they test u again for c diff and any other things. He had already started me on prednisone before my colonoscopy and although I was feeling better I still was going to the bathroom like 6-7 times a day. The following day he called me and said that my test for my cdiff came out positive. He immediately started me on vanco for 14 days. I felt better but still was experiencing bloody diarrhea. He told me that c diff is sometimes resistant to the antibiotics so he prescribed me a second dose of vanco. I basically was on antibiotics for a month and slowly started to taper off the prednisone 40, 30, 20, 10, & 5! Only after the second dose did my c diff clear. I find it weird that your doctor doesn't try to confirm a positive test for c diff.