Thanks for all the responses guys. I'm lucky enough that it doesn't matter too much rn. I just know it changes my 'end game' options, and that's for the most part what scares me.
You can surgeon shop for the ‘end game’, some surgeons will perform j-pouch surgeries for patients with crohns-colitis. It’s not an absolute disqualification.
Everyone was certain that I had UC even after my colectomy pathology reports. My surgeon said that I had UC and he’s a famous crohns surgeon who has a crohns surgical procedure named after him. I never gave it a 2nd thought - two years after my takedown surgery they are telling me that I have crohns because I have ulcers at the inlet to my pouch.
I love my jpouch even though I have to take meds for it, I’d do it all over again.
I wouldn’t worry too much about
the diagnosis or lack there of, they really aren’t worth the paper that they are written on.
DX'd with Severe Pancolitis June 2005
Previous Meds: 5ASAs, Predisone, 6-MP. Remicade, Humira, Simponi, Cimzia & Cyclosporine
3-step J-Pouch surgery: 2013 & 2014
Current Condition: Chronic Pouchitis -- Not as bad as I thought it would be
Current Meds: Stelara
Total Hip Replacement: 12/16 -- Thanks Prednisone!!!www.healingwell.com/community/default.aspx?f=38&m=3755226