Immune suppressants have helped me a lot. We're 'lucky' that our medicines don't seem to lower our life spans, so I would think of them as unhealthy (except for the prednisone which sucks!). You definitely might get sick more often, but I think that's a small trade for remission (I've had my fare share of getting sick because of the immuno-suppressants, and being a little more fragile because of them but its definitely a great trade still).
Cures are always hard, but here's for being hopeful. I think the closest we can really come to a cure in our lives is the immune suppressants, because the disease Is basically just the product of our immune systems attacking our colons. I wouldn't be hesitant to take them If I were you. 6MP drugs like mercaptopurine, and the biologics like Humira are miracles. Try them, and hopefully they'll offer you some relief. Please don't limit yourself to dietary interventions instead of trying the next class of medicine. (pharmaceuticals are scary, but hopefully the fact that it doesn't lower our life spans is comforting)
As far as food, I've noticed that the further out I am from a flare the more my diet
opens up. If you're flaring stay basic (I'm sure you know) but if your in remission then you can probably just eat what you want. It's not the food that's hurting us, its just how easy it is to retain/digest in concert with the inflammation and the IBS that comes with UC. 2 years is so long to be in a flare, and I couldn't even begin to imagine how that feels. But you should try to use all your medical options before surgery, because the J-pouch does cause you to go to the bathroom 4-5 times a day (no offense meant Keith, thank you so much for your help with my thread).
Like iPoop said, there's alot of box checking before surgeons will operate on you (and definitely before insurances will cover it). You gotta play the game and go through all the options before they do the final line of defense options.
If you want to try to follow a cure, I'd say we'll end up doing it with something like CRISPER or some kind of modified CAR-T cell therapy that can target the immune cells that are auto-immune. But that's neither here nor there at this point....
Post Edited (Sam1996) : 7/10/2019 4:49:14 PM (GMT-6)