Adrina- I was not doing well at that point after takedown either. I was having a lot of pelvic pressure, terrible frequency, butt burn and intense itching. I was pretty miserable. I think it was around three months post takedown that I started to see the tiniest light at the end of the tunnel. Things got better after that but it was super slow. Having said all that- I would talk to your GI about the weight loss and other symptoms.
Thank you this encouraged me. I'm close to three months so hopefully I get better. I combat butt burn by using zinc oxide so I've been fine so far with that.
Andrina - I lost a lot of weight after the colectomy. And now it's coming back on, which for me is NOT a good thing! (I do ok at home, but if we go away for a few days and eat out a lot, I come back a few pounds heavier....)
For how long have you lost weight and when did it start to turn around? If you remember.
I find after eating, I have 3-5 hours till I start hitting the toilet
the same time frame I have experienced.
Consider yourself part of our class for sure
Sorry to hear you are still experiencing issues . Is it gas cramps you are experiencing?
I suffered with that till about July then I did 4 sessions of FMT and all the gas cramps have subsided .
I too have serve joint pain which i still have now . I was told since my autoimmune disease couldn’t attack my colon any longer ( some mean surgeon removed it lol ) it was attacking my joints . Voltern rub is my favourite friend it helps with most of the pain.
It will get better give it time we all heal differently.
Thank you for including me into the 2018 class
Yes it's gas pain. And I can't always pass gas. I only can when I'm laying down. Standing up and passing gas is a big no-no.
So having joint pain means for us that we are still technically flaring then. Ugh. I've been taking Tylenol twice a day to keep my temperature normal (it's usually around 99.1-100.1 every day) and my joints from hurting. Otherwise I can't get through the day.