My level was 5 just before the first maintenance dose. I suspect it has dropped since then. I am currently on 5 mg/kg every 8 wks. I see my doc on Thursday and will discuss options with him. I would like to give remi more of a chance since I know it's doing something as I am no where near as bad as when I first started on it.
Is University of Penn in Philadelphia? That's a couple hours drive so not crazy about
that. I had checked out Hershey/Penn State Medical Center and when I first saw them a couple years ago for a 2nd opinion they were really nice and I considered switching to them. But when I saw them again last summer they were much more into "standard protocols" and I felt like I was not allowed to question anything and what they said was law.
Today is not a good day. 5x already today