HealingWell
Search Close Search
☰

active UC but no symptoms

Support Forums
>
Ulcerative Colitis
✚ New Topic ✚ Reply
❬ ❬ Previous Thread |Next Thread ❭ ❭
Posted 8/24/2019 5:49 AM (GMT -6)
Has anyone had perfect blood marker readings and no significant GI symptoms only to be told after a scope that there is still active inflammation in colon.

This has happened to me and feel really down. Thought it was remission.
Posted 8/24/2019 8:03 AM (GMT -6)
My blood markers have never matched my flare status. What do you mean no symptoms?
What is the extent of the inflammation, meaning how high?
q
Posted 8/24/2019 10:16 AM (GMT -6)
Yes, it has happened to me. Blood tests in range, no mucus, no blood, no cramps no nothing and yet the scope showed a mild inflammation. As far as I know it is considered ok by a few GE. In fact, after that scope I was in remission for ten years and the subsequent scope 5 years later showed no inflammation.
Posted 8/24/2019 11:20 AM (GMT -6)
Mine did too when I was first in remission. I don’t recall Now when that colonoscopy was but I do recall being disappointed it wasn’t showing full clinical remission yet. The next colonoscopy did though

It takes a while to get rid of the microscopic inflammation
Posted 8/26/2019 7:00 AM (GMT -6)
Yeah, had a disconnect between symptoms and endoscopy before. Thought I was doing well, and was given a severe inflammation surprise after my scope.
Posted 8/26/2019 7:05 AM (GMT -6)
Thanks for replies. How bad was the disconnect iPoop...were u completely without symptoms?
Posted 8/26/2019 7:57 AM (GMT -6)
I was on prednisone @ 20mgs, knew I was flaring but at 4-bms a day that were semi-solid, with slight urgency, and occasional blood. I thought I had mild inflammation at most. Doctor said I looked like raw hamburger meat inside, to go on remicade or consider surgery asap. Chose remicade which worked brilliantly.
Posted 8/28/2019 7:28 AM (GMT -6)
I think that this is what I’m experiencing. I get mild diarrhea most days and some pain off and on, but no blood and no issues from urgency. I started taking mezavan 1.2 g yesterday and I’m still taking safalok suppositories. Im keeping the suppositories because they worked two years ago and because of what I’ve read on this forum. Today I have a phone call (I hope) with my GI regarding my last scope. I have the prednisone she prescribed here and I’m going to do some hard thinking before I decide to take it, even if she has very convincing arguments
✚ New Topic ✚ Reply