I'm not sure if anyone out there will have a similar situation, since this is a little complicated. But:
Along with the dry eye (meibomian gland dysfunction) that seems to happen with a lot of UC patients, I also am very near-sighted. I've wanted to get corrective surgery for years, but now that I have dry eye (as of 2018), I REALLY want it--I can no longer wear contacts and my glasses are driving me nuts. Lasik isn't an option for me because my prescript
ion's too high (-10.5 and -11 in right and left eyes). There is, however, a surgery called Visian ICL, where they implant a permanent contact lens into your eye. According to clinics, I'm an excellent candidate for this surgery for various reasons: my high prescript
ion, no astigmatism, steady prescript
ion for a decade, etc. However, it's still a little nerve wracking because my situation is so unusual: most ICL patients don't have dry eye or UC, and most are not on immunosuppressive meds like I am.
According to the surgeon I've found, my dry eye shouldn't be an issue with the ICL surgery because it's similar to cataract surgery, which is not typically affected by dry eye. (And ICL, unlike Lasik, supposedly does not exacerbate dry eye.) There's also a low chance of infection because they use topical antibiotics and antiinflammatories on the eyes during the surgery, and I don't THINK those will interact with meds like Remicade and Imuran...
Still... Has anyone out there, by any chance, had this eye surgery after developing UC? How did it go?
And separately but relatedly, I welcome any advice for managing dry eye. So far I've tried MiBoFlow (similar to LipiFlow), heat packs and massage nightly (only for six weeks or so at a time--after that it always starts irritating my eyes), a drop of castor oil in each eye nightly (an ayurvedic salve that does help a bit), Retain eyedrops, and blinking exercises. Still, I'm often in eye pain, and it is so miserable!! I'm looking into Xiidra--it's not covered by my health insurer without prior authorization. There must be SOMEthing I can do to not be in this pain for the rest of my life...
Dx with proctitis 2014 age 35. Tried various mesalamines, prednisone, SCD, and macrobiotics. Pancolitis (and C. diff) June 2016; on Remicade and Imuran since then, plus antiinflammatory and fermented foods and stress-reduction practices. In semi-remission since ~July 2017. I'm blogging about
my journey at www.katiescolitisjournal.com.