Posted 9/17/2019 11:07 AM (GMT -6)
My teenage son has miraculously stayed in remission (had moderate to severe Pancolitis) on his current regime of 4 tablets Lialda daily, probiotics, various supplements and SFROWASA a few times per week. We didn’t even switch to the generic Lialda when it came out bc we heard too many stories of people falling out of remission. Well now we just got notice that insurance won’t cover Lialda or it’s generic starting 10/1 (thanks, not, for great notice). The only alternatives they are offering are APRISO, PENTASA (which the multi times per day dosing won’t work given age), balsalazide, sulfasalzine, and sulfasalazine delayed-release.
Thoughts on whether i should try to fight to continue on lialda or at least its generic (in what way does it differ from the suggested meds such that i could have grounds he needs it)? Thoughts on which would be the best alternative? He also suffers from pretty serious IBD related joint pain--if that’s relevant.