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Scope results

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Ulcerative Colitis
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Spring
Veteran Member
Joined : Jan 2017
Posts : 528
Posted 9/21/2019 7:56 PM (GMT -7)
Had a colonoscopy on Friday. Been on Entyvio since January of last year. When I was scoped in March of last year I had active disease to 45 cm. This time it was only 3 cm. Such a huge difference recovering afterwards this time. I filled a pad with blood last year from the biopsies and was hurting really badly afterwards. This time just a little blood right after, and feeling really wiped out/tired. Having flare type activity with blood tonight, so hopefully that resolves and doesn't get worse. Just like last time the results mention some other areas that are not full blown inflamation, but merrited biopsies. Biopsies confirmed UC last time, and I don't expect any different this time.

I didn't get the opportunity to ask him about some severe pain I had for an entire day after a motility type issue constipation painful bm. It hurt deep in the right groin area, and in my right lower back. I was starting to get concerned, but I was able to massage the muscles in my gut/hip area, and it would ease up briefly. I just don't understand why going to the bathroom has to feel like you pulled a muscle.

All in all, I have felt better with the colitis than I have in a long time. Now if I could just get my energy back.....

Oh, and I miss the old format on the boards. Main reason I don't come on here very much.
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iPoop
Forum Moderator
Joined : Aug 2012
Posts : 16194
Posted 9/23/2019 6:12 AM (GMT -7)
Glad your scope went well. Expect your system to be upset 3-4 days post-colonoscopy as the scope, prep, and biopsies are very invasive.
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Spring
Veteran Member
Joined : Jan 2017
Posts : 528
Posted 9/23/2019 8:48 AM (GMT -7)
Thanks for the info on typical recovery time. First time scoping while not flaring terribly.
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quincy
Elite Member
Joined : May 2003
Posts : 32560
Posted 9/23/2019 2:32 PM (GMT -7)
Sounds as though the Humira is working well! 👍
Once, I had bleeding for 4 days from the biopsies, but I was in a mild flare at that time. Usually the bleeding for me is a day or two at most.

When do you get biopsies results?

q
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Spring
Veteran Member
Joined : Jan 2017
Posts : 528
Posted 9/24/2019 6:25 AM (GMT -7)
I am actually allergic to Humira, but yes, the Entyvio does seem to be working. Sure took long enough! I have been on it for 19 months.
Surprisingly, the biopsies are back already. It says no dysplasia or granulomas, but showed mild disease activity in both the left colon biopsy and the rectum. I had felt like I was trying to flare up as I had to go off the Qi Dai for the week before the scope, so having all the flare symptoms made me extra nervous. Yesterday was rough, but today feels like I am finally going in the right direction towards normal. I have an appointment with a new Endocrinologist to discuss my being stuck at 2.5 mg of Prednisone due to issues when trying to taper.
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quincy
Elite Member
Joined : May 2003
Posts : 32560
Posted 9/24/2019 6:40 AM (GMT -7)
Ooopsie...entyvio. thanks for the clarification...I should check beforehand.

Ask about an alternating taper for the pred.

When is your endo appt? Good things are leveling out.

q
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Spring
Veteran Member
Joined : Jan 2017
Posts : 528
Posted 9/24/2019 1:39 PM (GMT -7)
I had the Endo appointment today. My last one was a bust as not even my GI talking to her got us anywhere. This Endo is switching me to hydrocortisone and we will be doing a Cortysin Stim test in a month. Can't do the test on Pred. We will evaluate if I can try tapering after the test.
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Spring
Veteran Member
Joined : Jan 2017
Posts : 528
Posted 10/7/2019 4:22 PM (GMT -7)
I am so bummed.....I never recovered after my scope, and am back to getting up in the night, going 4 plus times with some blood, and pain. I was feeling better than I had in over a year before.
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CCinPA
Veteran Member
Joined : Dec 2014
Posts : 1572
Posted 10/7/2019 4:39 PM (GMT -7)
Hopefully this is a short term blip. Are you using any rectal meds? Adding them might be enough to nip this in the bud.
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Spring
Veteran Member
Joined : Jan 2017
Posts : 528
Posted 10/7/2019 7:33 PM (GMT -7)
Mesalamine based enemas give me pancreatitis symptoms. I don't think my insurance covers steroid enemas. Didn't notice any difference when I used steroid suppositories before.

I just switched from 2.5 mg of Pred. To hydrocortisone. I wonder if that didn't contribute? Seems like I have read of others that flare going down that last little bit of pred.
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