Posted 12/7/2019 2:19 PM (GMT -6)
I'm so happy to hear that! That paranoia should dissipate with time. It did for me. I'm still extra careful to try to avoid touching door handles at hospitals and doctors' offices and I wash my hands immediately after leaving the hospital. You did go through a lot!
I've been better, lol. I'm still on 30 mg pred., so I don't know if I'm in remission or if the Humira and Imuran are helping yet. I'm tapering down to 20 mg next week. I'm not really having UC symptoms, but I feel pretty terrible most the time, I think from side effects from the Imuran. I'm having nausea every day, lower appetite than normal, and am tired, bloated, having terrible moon face, and I got a stress fracture in my foot from just walking 2 miles, so I'm very worried pred has destroyed my bones, and I can't even go for a walk now since I'm in a walking boot so that has me pretty down. Waiting to get a bone density scan. I'm hanging in there though. Thanks for asking.