I've been a long time reader of this forum. I was diagnosed with pancolitis in 2004 when I was only 13. Asacol put me into a wonderful remission until I was about
20. Since then I've had an inflamed rectum on and off with a cecal/ascneding colon patch. I usually do not have many life altering symptoms. I have formed stools about
once a day although there is often mucus, blood and some cramping. In this way I've always seen myself as lucky.
My question today has to do with cancer. I know I am at a substantially increased risk of cancer since I was young and diagnosed with pancolitis. Has anyone here had several decades of ulcerative colitis without any dysplasia/cancer? I feel doomed by the articles I read.
I get scoped every 2 years and will likely go every year soon. My gastro doesn't see many UC patients, and I can tell gets very concerned by my inflammation, age and length of disease. I had a colonoscopy yesterday and she thought she saw a suspicious area in the ascending colon which she biopsied (along with random biopsies). I'll know the results in about
a week. She made it seem like surgery is definitely in my future.
Thank you for reading. My anxiety is a bit out of hand right now since my doctor hinted at cancer/colostomy.
Ulcerative pancolitis dx 2004 (age 13)
Inflammation now mostly at rectum and some around cecum
Now on Balsalazide (9 pills a day) and Mesalamine enemas and suppositories
Remission from Asacol until 2012 (21)
2 Flares in 2012 and 2016 - 6MP, prednisone, (tapered after a few months)