Posted 10/7/2019 12:47 PM (GMT -7)
Hi all! I need your advice. I’m having some issues with bulking up my stool for quite some time. What really helps me is a product called Enterosgel, which I get shipped form my home country. It is a silicon-based gel that acts as an absorbent. It really helps to keep thigs solid. The problem is, I’ve been using it for over three year, and I’m not sure what are the long terms effects. Plus, it is quite costly. Even though I’ve been using it only once a day, as opposed to three times - as indicated on the instructions, am still uneasy about it. I am looking to find an alternative. I tried fiber supplements like psyllium seed powder and husk, Metamucil, and most recently Citrucel. None of them seem to do the job, and Citrucel even made me feel worse. I must admit though, I tried very small doses of each, a teaspoon or so.
A little about my disease activity – I am now on three pills of lialda, nightly rowasa, canasa, and hydrocort sup every sixth day. I also take numerous supplements and probiotics. My diet is mostly low fiber, with lots of rice, potatoes, bananas, avocados, bread, and soft meats. I have one bm per day, with no blood. No major issues with bloating or cramping for the most part. My stool resembles soft, broken up chunks, or toothpaste-like soft snakes (apologies for being so descriptive). I suspect that I have a slight mesalamine sensitivity which is contributing to this consistency. Around a week ago I tried stopping my intake of Enterosgel, and my bms became even softer, yet still once per day. My GIs don’t seem to be concerned about this, and tell me to keep doing what I’m doing. I would greatly appreciate any ideas you might have for bulking things up.
I am so tired of this disease words can’t describe! My family keeps dismissing me, and saying that it’s all in my head. I’m glad there are places like this forum, with people who understand.
Diagnosed in 2010 - moderate pancolitis
2 year remission since 2014
September 4, 2016 - flare begins, 6 or more bms per day, 40 mg prednisone, hydrocortisone suppositories (stopped Nov. 9)
Scope November 9 showed mild, distal UC.
Current medication: nightly Rowasa, nortrypteline 10 mg from ibs, Baswellia, Turmeric, multivitamin, TCM herbs, acupuncture