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Ulcerative Colitis
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Happier!
Regular Member
Joined : Feb 2014
Posts : 283
Posted 10/13/2019 2:21 PM (GMT -7)
Looking for something new to try. Any suggestions?
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geezernow
Regular Member
Joined : Nov 2017
Posts : 181
Posted 10/13/2019 4:33 PM (GMT -7)
kayaking, fly fishing, POTTIentology
diagnosed in 1997. meds: Entyvio, Mesalamine-800mg. 3x a day,Hyoscyamine sulfate odt 0.125 4-6 hours as needed,Omeprazole 40mg 1 capsule a day,Latanoprost op 0.005% 1 drop each eye, Amlodipine Besylante,Metronidazole, vancomycin, diphenoxylate/atropine
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Rosiedays
Regular Member
Joined : Jul 2017
Posts : 237
Posted 10/14/2019 4:49 AM (GMT -7)
Crocheting , walking, board games , I used to lift weights, run, and dance, school, cooking, plants
diagnosed with moderate chronic colitis on July, 2017; prednisone, pentasa, and salafalk suppositories so far. Playing around with my plant based diet.
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greenuc
Regular Member
Joined : Sep 2011
Posts : 229
Posted 10/14/2019 6:16 AM (GMT -7)
Flying remote control airplanes, fish tanks.
Diagnosed: Moderately Severe UC in September '11
Currently: mild active colitis
Medication: Lialda 4 pills, once daily
Tried Uceris 3/19 for 8 wks, did not put me in remission
Entyvio started June 12, 2019
Supplements: Boswellia, mushroom extracts, Astragalus
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iPoop
Forum Moderator
Joined : Aug 2012
Posts : 15529
Posted 10/14/2019 11:06 AM (GMT -7)
Dabbling in a modern homesteading lifestyle with our fifteen, or or so, country acres in the woods. Trying to be as self-sufficient as much as is possible with what we can grow/forage/gather/hunt on our own land, an aspiration and hobby but certainly not a 100% success. Made about 11-gallons of cider thus far of apple cider over the weekend from our orchard. Lots of gardening/canning/blanching/freezing veggies for winter. Wife's tried making breads, wide variety of cheeses, beers, wines, meed, and pretty much anything we can make ourselves.
Moderator Ulcerative Colitis
John
, UC Proctosigmoiditis in Remission
Rx: Remicade @5mgs/kg/6wks; 50mgs 6MP; nightly Rowasa

I knew I was in for trouble when my bowels started making the same noises that alien from the movie Predator (1987) did...
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Happier!
Regular Member
Joined : Feb 2014
Posts : 283
Posted 10/15/2019 10:31 AM (GMT -7)
Thank you
Born in ‘62. Symptoms since October 2012.
Diagnosed January 2014 IBD, Ulcerative Colitis, Pancolitis
Currently: Apriso, Entivio, Valtrex... it varies.

Have tried: Almost every healthfood thing in the world (NO help)
If this could be cured with herbs, vitamins or diet…
Good days, bad days and a lot of sleep.
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Michelejc
Forum Moderator
Joined : Jan 2011
Posts : 2278
Posted 10/15/2019 10:59 AM (GMT -7)
I have a side business which I love. I cater meatballs with sauce. I also babysit the K-9 bomb dogs when their handlers go on vacation.
MODERATOR-UC FORUM
59, female - diagnosed with moderately severe proctitis/mild diverticulosis
Lialda - one a day
6mp - 50 miligrams
Zocor - 40 mg
Calcium with Vitamin D
Glucosamine
Magnesium
B-Complex

"Fly under the radar" - Dad -
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notsosicklygirl
Forum Moderator
Joined : Dec 2008
Posts : 17528
Posted 10/15/2019 11:39 AM (GMT -7)
I am always busy doing stuff around the house. Either planting, fixing something, cooking, having visitors, designing/decorating, tending to the yard... I also like to play racket sports, swim and hike. I surround myself with my pets and I tend to try restaurants/bars and shop quite a bit. I want a new hobby too.
Moderator: UC
Currently: no meds 6/15 Step 1 J-pouch Surgery Complete 9/15 Step 2 Complete 11/15 Step 3 Complete
From Sickly to UC Free

Give a man a fish and he will eat for a day; teach a man to fish and he will eat for a lifetime; give a man religion and he will die praying for a fish
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TroubledTurds
Veteran Member
Joined : Jan 2004
Posts : 8511
Posted 10/15/2019 8:52 PM (GMT -7)
I listen to the Dandy Warhols as much as possible -
dx'd with pancolitis 12/21/03
current supplements:vit D, vit K2, cal/mag - grain free/paleoish diet that includes 100% grass fed beef, raw goat milk, & local organic free range eggs, lots of all natural well water, exercise, sleep as much as possible & enjoy this great life that God has blessed me with !
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Sara14
Veteran Member
Joined : Mar 2007
Posts : 5559
Posted 10/16/2019 5:10 PM (GMT -7)
I lead hikes on the weekends with a Meetup group. Meetup has a ton of different types of groups if you're looking to be more social or make new friends. I also like running, backpacking, baking, cooking, reading and my favorite activity: spending time with the love of my life -- my cat. smile
35 years old; diagnosed UC March 2007 (prob. pancolitis; couldn't get scope all the way thru).
9-29-16: chronic and active proctosigmoiditis (infectious cause). Battled reoccuring campylobacter & c diff. Oct-Dec 2016. Remission since Dec. 25, 2016 until I started smoking again May 2018 after 9 yrs quit. Maintenance: Delzicol, 6, 2xday; Rowasa nightly. Started Remicade 7/25/19.
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imagardener2
Veteran Member
Joined : Jan 2010
Posts : 5884
Posted 10/17/2019 4:05 PM (GMT -7)
I'm a gardener haha, and plant native plants that support birds, bees, butterflies, snakes and all kinds of living creatures in my small yard. I converted our lawn from irrigated to non-irrigated by planting a mix of native groundcover and drought tolerant grass. Old fashioned roses and bamboo are favorites too. I used to plant food plants but the last 2 years climate in Florida has been so hot it made that very difficult so I grow herbs in pots, lots of different basils to cook with.

Cooking is also a hobby but took a back burner lol due to my other avocation, painting. I've painted for 30+ years and had my first solo show this past January. Art is meditation for me, turns off the world's noise. I also learned woodworking to make my art pieces, self-taught chop saw, table saw and router. Love power tools.
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iPoop
Forum Moderator
Joined : Aug 2012
Posts : 15529
Posted 10/18/2019 3:32 AM (GMT -7)
Congrats on the solo show! Graduated art college years ago but seldom paint now (intensity of art 24/7 burned me out I think).
Moderator Ulcerative Colitis
John
, UC Proctosigmoiditis in Remission
Rx: Remicade @5mgs/kg/6wks; 50mgs 6MP; nightly Rowasa

I knew I was in for trouble when my bowels started making the same noises that alien from the movie Predator (1987) did...
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Oligodar
Regular Member
Joined : Jul 2017
Posts : 175
Posted 10/18/2019 5:37 AM (GMT -7)
I trade financial markets. But I could not recommend it. There is high probability that something will go wrong. UC is stressful enough itself.
Ulcerative Colitis for 36 years. 16 years ago sigmoideum adenocarcinoma -> surgery
Salofalk 1000 mg, Mirtazapine 15 mg, Magnesium + B6, fish oil, in remission |:--)
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momto2boys
Veteran Member
Joined : Jun 2013
Posts : 2229
Posted 10/18/2019 7:40 AM (GMT -7)
You guys have some really great hobbies! I wish I had time for something but with two kids in a zillion activities, my husband and I are swamped driving them around these days. I do love to bake and garden (seasonally for each) but I don't have much extra time between work and kid stuff. I do run and practice yoga when I can sneak it into my schedule and I walk to work every day so that I get some exercise in.
44 yrs old diagnosed with proctosigmoiditis 6/13/13
meds- 4 Lialda, 100 mg Imuran (sfRowasa nightly)- supplements: probiotics (1 VSL3 cap, 1 culturelle and 1 reuteri). Allegra for seasonal allergies as needed. Allergic to sulfites. Currently gluten/dairy free (except yogurt) and eating lots of RS.
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IamCurious
Veteran Member
Joined : Jan 2010
Posts : 3390
Posted 10/23/2019 2:05 PM (GMT -7)

Imagardener2 said...
I'm a gardener haha, and plant native plants that support birds, bees, butterflies, snakes and all kinds of living creatures in my small yard. I converted our lawn from irrigated to non-irrigated by planting a mix of native groundcover and drought tolerant grass. Old fashioned roses and bamboo are favorites too. I used to plant food plants but the last 2 years climate in Florida has been so hot it made that very difficult so I grow herbs in pots, lots of different basils to cook with.

Cooking is also a hobby but took a back burner lol due to my other avocation, painting. I've painted for 30+ years and had my first solo show this past January. Art is meditation for me, turns off the world's noise. I also learned woodworking to make my art pieces, self-taught chop saw, table saw and router. Love power tools.

That's my girlfriend almost to a 'T'. She grows our own food plants, allows bamboo and a wide variety of native plants to flourish, and has a huge butterfly garden full of bees and butterflies. When a hurricane knocked down two huge trees she chose to allow them to remain in place. All I see is an uninhabitable wilderness full of ticks, snakes, and mosquitoes. (But that might be because my father had me pulling weeds since I was 5 years old and that drove out any love of gardening from me).

She isn't into painting but she won a scholarship to The Juilliard School of music and plays a variety of musical instruments. I never even had piano lessons.

When we first met I thought she was good-looking and hoped for mass production sex before she realized that we had nothing in common. That was 19 years ago and we are still together.

BTW in case any of you also have a butterfly garden, these tick control tubes seem to really work with minimal disturbance to the environment.

https://www.thermacell.com/products/tick-control-tubes
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Vlight
Regular Member
Joined : Sep 2019
Posts : 22
Posted 10/23/2019 3:25 PM (GMT -7)
I read, watch too many tv series. I used to have handmade jewelry shop on etsy. I’m trying to get into paper art (bought supplies XD) I try to paint sometimes. I used to be into photography. Most my hobbies involve me sitting and I already sit 8hrs/day for work so it’s been meh with things I like to do. I try cooking new things on the weekend. I really want to try my hand at ceramics.
I’m taking Balsalazide, Mesalamine enema, vsl #3
Finding this forum very helpful in the questions I have. Was freaking out about weight loss ??
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Happier!
Regular Member
Joined : Feb 2014
Posts : 283
Posted 10/25/2019 5:10 AM (GMT -7)
Lots of great ideas!

I’ve bought some paint. I’m enjoying playing. I bought a bunch of fancy frames. Anything looks better framed. My hallway will be a gallery.
Born in ‘62. Symptoms since October 2012.
Diagnosed January 2014 IBD, Ulcerative Colitis, Pancolitis
Currently: Apriso, Entivio, Valtrex... it varies.

Have tried: Almost every healthfood thing in the world (NO help)
If this could be cured with herbs, vitamins or diet…
Good days, bad days and a lot of sleep.
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jano437
Veteran Member
Joined : Jul 2005
Posts : 1615
Posted 10/25/2019 7:15 PM (GMT -7)
Autograph Collecting
Diagnosed July 2005 with Pancolitis
IBD related arthritis
sulfasalazine 4 a day,
Culturelle , lisinopril, Asacol Hd 3 a day
Humira once a week
Canasa
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noodlesnoodles
Regular Member
Joined : Nov 2015
Posts : 335
Posted 10/25/2019 9:18 PM (GMT -7)
I'm not sure if you mean something you can do from home (e.g. while in a flare) or just in general. If you are able to be away from a bathroom and whatnot, check around to see what your local activity center/gyms have available in terms of classes - you'd be surprised what they have nowadays. There is a community center where I live that offers "Water Zumba."

If you are talking more about gentle, flare-friendly activities, I like knitting. There are super comprehensive free "classes" on youtube now so it can be a low-investment activity (both financially and in terms of energy).
30 year old female
Ulcerative Pancolitis (w/ backwash ileitis)
Current meds: Xeljanz, Uceris, 20mg MTX injection weekly, Apriso, Canasa, B12 injections twice monthly
-TPMT deficiency-
Failed Remicade, Entyvio
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MarkWithIBD
Regular Member
Joined : Jun 2018
Posts : 429
Posted 10/27/2019 7:08 PM (GMT -7)
I'm a classical history buff so I love reading anything about the ancient world, whether it's stories of the literal events of the time, or the arts and culture of that time. Lately I have been learning about ancient astrology in the Hellenistic era, and how they used planetary and star patterns to determine major events like crop planting/harvesting, political events, festivals, and all the major things life revolved around. I'm not an astrologer and I don't follow modern astrology, I'm more interested in how the ancient Greeks tied their deity worship into a mathematical system that could be used to plan important societal events.

Anyway, that's the topic I'm on right now. I love nerding out on history... I watch documentaries and read books endlessly. It's one of the only "plus sides" of being home bound in a flare, is I can do lots of interesting reading. But I just want to say!... screw you UC! I am still giving you ZERO credit here. There is no real silver lining!
Proctosigmoiditis dx 2015 with 1 major life threatening flare per year since
Waxes and wanes on yearly cycle -- remission vs. deadly flare
Sept 2019 remission ended with major flare, dx upgraded to pancolitis
Failed all meds except prednisone; prev tried Entyvio, Remicade, Humira
Allergic azathioprine, 5-ASAs, rectal meds
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janey47
Veteran Member
Joined : Sep 2010
Posts : 765
Posted 10/28/2019 3:01 PM (GMT -7)
I have always been a reader. Recently, I started knitting, on a kind of a fluke, and now a lot of the time I listen to audiobooks while I knit. I read (or listen to) approximately 150 pages a day.

I also have a suite of about 18 solitaire games on my kindle fire for time spent in the bathroom. My cats keep me company there, too.
dx 4/09 (1 week before breast cancer dx) with mild to moderate UC through mid-transverse colon
4.8 g Lialda
colonoscopy 1/7/19 reflects mild pancolitis with significant inflammation through sigmoid colon.
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