I have been in the midst of an UC flare since May. I initially doubled my Pentasa to 4g a day and was put on a course of Budesonide (I have stayed away from Pred due to historic reasons) but neither helped. I was also put on Mercaptopurine but had to come off it due to adverse side effects. A colonoscopy showed my UC to be severely active up to and including my sigmoid colon. I was subsequently put on Infliximab but had an allergic reaction due to built up anti-bodies I guess from having it a few years ago (when it was highly effective).
My consultant has now put me on Vedolizumab and I had my first infusion last week. I was a little gutted to be told by the nurse that it can take up to 10 weeks to work.
My UC symptoms are getting worse and I’m finding the urgency and subsequent accidents quite debilitating and a nightmare with two young children to look after. If anyone has any positive experiences of being on Vedolizumab to give me some hope that things might get better I’d be so grateful.
Thank you x
Post Edited (K8) : 10/16/2019 4:43:24 PM (GMT-6)