I started myself back on 50 mg prednisone.
I've been in so much pain I was scared I was going to pass out on the toilet. I've been pooping pure blood and have been up throughout the night to go to the bathroom and sit there in pain with not much coming out. And this pain is even after taking half a pain pill (I barely have any left and doctors hate giving them out, so I was trying to only take half).
I never tapered off the Rowasa. I just missed a few nights here and there. Not many at all though. Now that I'm flaring, the Rowasa just seems to make things worse; it definitely doesn't help. So what do people do while they are still early in their infusions and have symptoms again? Go back on prednisone? I'm so upset. I feel like I have a bit of a fever too, although I had that on and off with my cold. At least my cold symptoms are way better today, lol.
Am I going to have to do a 2-month taper off prednisone again or how does this work with Remicade? Will the Remicade make me better right after my infusion Thursday? I have a feeling no one knows the answers to these questions, including my doctor.
35 years old; diagnosed UC March 2007 (couldn't get scope all the way thru).
9-29-16: chronic and active proctosigmoiditis (infectious cause). Battled reoccuring campylobacter & c diff. Oct-Dec 2016. Remission since Dec. 25, 2016 until I started smoking again in 2018 after 9 yrs quit. Maintenance: Delzicol, 6, 2xday; Rowasa nightly. Started Remicade 7/25/19.
Post Edited (Sara14) : 10/29/2019 6:07:05 AM (GMT-6)