I'm on day 9 of 50 mg prednisone and this morning I saw a small amount of blood on the toilet paper again. I have never experienced this before and it really worries me if even prednisone isn't going to get me into a remission-state anymore. I really do not want to get surgery. I'm also really sick of talking with my doctor's nurse. Luckily, I have an appointment on the 18th. I don't know if I should be going up to 60 mg of prednisone in a case like this or what. My symptoms are very minimal but I shouldn't start tapering if I still have symptoms at all, right? Why would the Remicade have seemingly put me into remission for 2 months and now is doing nothing? My bloodwork hasn't come back yet for the Remicade levels, and it's been over a week.
My symptoms are "minimal" now, but I'm still uncomfortable and in pain a lot, I am still losing sleep and I'm still wasting hours on the toilet, even though I'm not "going" much. I don't feel like I can go out and exercise much or do a long hike or run. I have gone on a couple short walks. Anyway, my quality of life isn't very good and I'm almost out of pain pills and am scared to ask for more because I don't want to be seen as a druggie (I've had this bottle since May so I'm definitely not a druggie).
35 years old; diagnosed UC March 2007 (couldn't get scope all the way thru).
9-29-16: chronic and active proctosigmoiditis (infectious cause). Battled reoccuring campylobacter & c diff. Oct-Dec 2016. Remission since Dec. 25, 2016 until I started smoking again in 2018 after 9 yrs quit. Maintenance: Delzicol, 6, 2xday; Rowasa nightly. Started Remicade 7/25/19.
Post Edited (Sara14) : 11/6/2019 6:26:20 AM (GMT-7)