I can assure you that someone without a chronic condition or without having been through something similar with close family etc will not understand (99% of the time.) I am much more in tune with other people's health issues since I got UC. Before that, I was under the naive assumption that when you got sick, you just went to the doctor and they would fix you with a pill or a surgery. If not, you would die.
Most people only understand illness as an acute attack of something that you either get better or die from because that is their only personal experience with being sick... common cold, chicken pox, cancer, heart attack is about
as deep as most people think about
illnesses. They are too busy worrying about
other crises in their own lives. After all, the doctors on TV almost always get to the bottom of things.
Most who I've casually talked to about
autoimmune diseases think it has something to do with AIDS. One person even had a parent with M.S. and had never heard the term autoimmune disease and asked if that meant "like AIDS or something?"
Other people will assume you are looking for attention, faking it to get out of work or similar without glaringly obvious visual symptoms to "prove" you are sick. The nuance of living a diminished quality of life is difficult to explain to those who are not experiencing it. Your special diet is a real nuisance to their ability to throw a nice dinner party.
When people hear of an illness for the first time they only want to know if it is fatal. If it isn't, they will base all judgement of how sick you are on how you look. When I lost weight from a UC flare many overweight people asked me "how can I get that hahahaha?"
I really am just trying to be real here, not pessimistic. If you have a close friend who really cares be sure to nurture and cherish that friendship because people like that are hard to find. You are lucky to have them.
Post Edited (Uniform Charlie) : 11/4/2019 10:43:49 AM (GMT-7)