I got some response from both Remicade & Simponi but neither has been good enough to get me into remission. I haven’t been able to stay off steriods on either so I’m not holding out much hope the 2 weekly injections will get me there. It’s worth a try though and I’m lucky the manufacturer has agreed to give me free injections to top up the government funded ones available to me.
My gi doesn’t rate entyvio but I’ll probably have to try that next if the Simponi fails. I’ve read some good things about
it on here but my gi said he uses that as the last attempt before surgery. He said it’s usually the more milder patients who get good relief from it and doesn’t seem hopeful it’ll work on me so he’s been reluctant to start me on it. I think his feelings come from personal experience as his reluctance seems at odds with lots I’ve read about
Stelara and Xeljanz aren’t approved for UC in Australia yet. Stelara has just been given approval for crohns so it shouldn’t take too much longer for us UC sufferers to get a chance to try it, hopefully within 12 months it will be available. Xeljanz approval is currently on hold due to safety concerns about
lung clots so at this point I’ve no idea when that will be available, hopefully before I go down the surgery route!
Diagnosed with Pancolitis in 2013
Salazoparine 500mg 6x daily
Short spell on Imuran which was stopped due to hepatotoxicity
Currently starting Simponi whilst also taking salofalk granuals and enemas.
Post Edited (ausruby) : 11/5/2019 1:08:47 PM (GMT-7)