woo hoo!!

That’s awesome news! I hope you continue to be in remission.

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Dx with Proctitis


Supplements:Omega 3 Fish Oil, Iron/VitC, Liquid D3, Culturelle, Folic Acid, Biotin

Whew! Looks like the remicade is working for you! I bet you are so happy to finally find the one the works for you (fingers crossed! — don’t want to jinx you)

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UC pancolitis DX March 2016, Partial Colectomy for diverticulitis Sept 2014
Apriso .375 g x 4/day, Canasa & Uceris foam if needed.
Probiotics, Reuteri pearls, CoQ10, Metamucil daily.
Started Entyvio 3/29/17 (Constant flares since March 2016 only relieved by Prednisone)
IN REMISSION!

Thank you thank you thank you thank you!!!!!

Entyvio worked great for me for over a year and then it stopped. I was bummed. But I have a better feeling about remicade. I think it's going to work for years and years.

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60 yo female diagnosed w/UC to mid transverse 1/1/13, now UC or Crohn's colitis. Remission on Entyvio 10/2016-12/2017 before losing response. Had response to Humira with loading doses in Nov 2018, but then lost response. Current meds: Remicade 3/15/19, Asacol HD 2 Tabs 3x/day, Capozide 1/day (hypertension). Dexilant.

Congrats, happy for you.

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Moderator Ulcerative Colitis
John, UC Proctosigmoiditis in Remission
Rx: Remicade @5mgs/kg/6wks; 50mgs 6MP; nightly Rowasa
Luckily farting works like burping and not like sneezing

So happy for you CC! You know I was having sort of IBS symptoms last November but no blood. I had a colo and it was completely normal. I was anxious so started lexapro and then all ibs symptoms went away. So even if you are having minor symptoms your scope would probably be normal! Remicade is awesome!

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Thanks

T
diagnosed proctitis April 2016 s/p a c diff infection age 53
Nov 2017- ?Crohns colitis to mid transverse - mild/moderate
started Humira 11/17/17, -5/18- failed Humira
started Remicade 6/8/18 - in remission per scope 11/29/18
past meds- cortifoam, canasa, rowasa,balsalazide, prednisone

That's great news!! Hope it continues on this path for a long while.
q

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*Heather* I give suggestions, do with them what you will.
Status: ...Asacol 3 @ 2x daily; Salofalk enema @ 3rd night (nightly/ flares, tapered/maintenance)
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol 20mg as needed; Zantac 150mg; Pulmicort/Oxeze/Airomir (asthma); Effexor XR 75mg (depression); Rosuvastatin 10mg (cholesterol); Telemesartin 80mg (BP)
~vitamins/minerals/supplements; Probiotics....(RenewLife Ultimate Flora Critical Care + Genuine Health Advanced Gut Health 50 billion @ bedtime)
~Metamucil capsules 6 @ 2x daily with meals; Vitamin D 4500 IU
~URSO 500mg @ 2x daily for Primary Biliary Cholangitis
~Sjogren's (secondary)...symtomatic treatment
"TREAT (FROM)BOTH ENDS" worth it !!

SO happy for you!!! That's about the best news any of us can wish for while in a flare. CONGRATULATIONS!!!!!

woo hoo has turned to boo hoo

Quite a bit of blood today and looser stools. Over the weekend I did have a good bit of junk food which likely accounts for the looser stools. I suspect the blood is because I was talking ibuprofen for several days this past week due to knee issues and tylenol wasn't cutting it ... the ibuprofen didn't take all the pain away either so now I have an appt with another doc for my knee. (I've had osteoarthritis in my knee for years, but since the weather changed it has become extremely painful)

I'll be back on enemas tonight and will just have to suck up the knee pain until I can see the doc next week.

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60 yo female diagnosed w/UC to mid transverse 1/1/13, now UC or Crohn's colitis. Remission on Entyvio 10/2016-12/2017 before losing response. Had response to Humira with loading doses in Nov 2018, but then lost response. Current meds: Remicade 3/15/19, Asacol HD 2 Tabs 3x/day, Capozide 1/day (hypertension). Dexilant.

Ups and downs of this lovely disease! It’s still early for you but I think you’re on the path. That path may be a bit hilly and full of rocks at the moment but will hopefully smooth again soon!

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UC pancolitis DX March 2016, Partial Colectomy for diverticulitis Sept 2014
Apriso .375 g x 4/day, Canasa & Uceris foam if needed.
Probiotics, Reuteri pearls, CoQ10, Metamucil daily.
Started Entyvio 3/29/17 (Constant flares since March 2016 only relieved by Prednisone)
IN REMISSION!

Be sure to advise the ortho you took the prednisone. Prednisone works on the inflammation with OA too.

Have you tried any of the pain patches such as Salon Pas or Tiger Balm that has some lidocaine in them? At least the lidocaine gives a little relief. I don't know if you have had an MRI done on your knee, but I would not be shy about asking for one. Do you have a lot of swelling?

The cold temps affect both of my knees something terrible. You may want to try moist heat, moist heat goes deeper than dry heat. I am told knee replacements, but I just can't go there in my head. I have had enough scopes done to them already. I had the Supaartz injections done but it's not a permanent fix either.

One thing that has helped me more than anything is getting in the pool in the summer months. I sit on a noodle & do kicks. In water you are weightless & cannot cause an injury. I went from not being able to bend or squat down, say to clean a bath tub. My knees were so bad that we had the tub taken out & had a larger shower with bench installed. I was falling too much getting in/out of the tub. This has helped more than all of the PT that I have done over the years.

Good luck on Monday.

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Susie
Moderator in Chronic Pain & Psoriasis Forums

Susie -- I will def let the doc know about the pred. I bought some lidocaine cream today and just now applied it. Hope it helps with the pain. After a couple hours of shopping today my knee is really hurting badly at the moment. Sitting here with my leg propped up with an cold rice bag on it. I thought I was supposed to use cold for inflammation I'll go throw the rice bag in the microwave and apply some heat! It is swollen, but not like I would have an injury I don't think. So far I have only had x-rays. I had PT for my other knee a couple years ago and it worked wonders so am hoping that it will do the trick for this knee too,

Heather -- I was on 60 mg in Feb after 40 did nothing for my UC. 60 was the magic number and worked wonders. 2 days after being on that dose I could actually leave the house again. Pred does horrible things to me though. I was really desperate to try it for my knee!

I also bought some ginger root today. Someone else said that it helps them. I like ginger so am going to make some ginger tea

So annoying that I was finally feeling like I was in remission and now I have this knee issue. Looking forward to some nice boringly healthy days ahead once the knee is resolved!

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60 yo female diagnosed w/UC to mid transverse 1/1/13, now UC or Crohn's colitis. Remission on Entyvio 10/2016-12/2017 before losing response. Had response to Humira with loading doses in Nov 2018, but then lost response. Current meds: Remicade 3/15/19, Asacol HD 2 Tabs 3x/day, Capozide 1/day (hypertension). Dexilant.

When I got my hip replaced I refused all NSAIDS. The surgeon offered me a topical NSAID ointment for the surgical area. I had to go through a compounding pharmacy to get it so I never filled the script because I didn’t need it after I got out of the hospital.

Maybe you could get an NSAID ointment for your knee so it isn’t so systemic and effects your colon.

I never take NSAIDs, I personally would rather deal with the pain than risk a flare. Just my personal opinion. I also hate pain killers because they constipate my jpouch and that is VERY uncomfortable.

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Keith

DX'd with Severe Pancolitis June 2005
Previous Meds: 5ASAs, Predisone, 6-MP. Remicade, Humira, Simponi, Cimzia & Cyclosporine
3-step J-Pouch surgery: 2013 & 2014

Current Condition: Chronic Pouchitis -- Not as bad as I thought it would be
Current Meds: Stelara
Total Hip Replacement: 12/16 -- Thanks Prednisone!!!
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