Posted 11/17/2019 7:52 AM (GMT -7)
Let’s talk about fatigue...
I’m so tired.
I was diagnosed in the fall 2017. I started my masters shortly after that. Now I’ve almost finished it, will be done in April, so I’m going to push through since I got this far. I only work three days a week and I have vacation time and sick time when I need it so I’m lucky that way.
I have been off prednisone for two weeks, and I’ve had diarrhea in the mornings for the last three days. I don’t have as much pain or bloating anymore and I love that. I see my dr. on November 29 after a colonoscopy at the end of July. I take pentasa four times a day and safalalk suppositories two times a day.
I’m exhausted! I thought I was tired from going off prednisone last week, and now I think it’s just me. I really miss the energy I had on prednisone. I sleep or sit on the couch not wanting to get up far too much. I used to walk and swim. Fatigue is my worse symptom.
Worrying about UC fatigue, being scared and without a chance to see my doctor, thinking about my diet, finally facing the fact that this will likely be a life long issue, knowing my (grown)children think I should spend less time watching tv, must only add to my tiredness.
I do an assignment for school, or the dishes. Or I bake an oat loaf, and then the rest of the day is spent resting. The thought of getting up to check my laptop even is daunting. I bet a support group would help, and letting go of fearful thoughts would help too.