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Fatigue

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Ulcerative Colitis
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Rosiedays
Regular Member
Joined : Jul 2017
Posts : 313
Posted 11/17/2019 7:52 AM (GMT -7)
Let’s talk about fatigue...

I’m so tired.
I was diagnosed in the fall 2017. I started my masters shortly after that. Now I’ve almost finished it, will be done in April, so I’m going to push through since I got this far. I only work three days a week and I have vacation time and sick time when I need it so I’m lucky that way.
I have been off prednisone for two weeks, and I’ve had diarrhea in the mornings for the last three days. I don’t have as much pain or bloating anymore and I love that. I see my dr. on November 29 after a colonoscopy at the end of July. I take pentasa four times a day and safalalk suppositories two times a day.
I’m exhausted! I thought I was tired from going off prednisone last week, and now I think it’s just me. I really miss the energy I had on prednisone. I sleep or sit on the couch not wanting to get up far too much. I used to walk and swim. Fatigue is my worse symptom.

Worrying about UC fatigue, being scared and without a chance to see my doctor, thinking about my diet, finally facing the fact that this will likely be a life long issue, knowing my (grown)children think I should spend less time watching tv, must only add to my tiredness.

I do an assignment for school, or the dishes. Or I bake an oat loaf, and then the rest of the day is spent resting. The thought of getting up to check my laptop even is daunting. I bet a support group would help, and letting go of fearful thoughts would help too.
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Sara14
Veteran Member
Joined : Mar 2007
Posts : 6235
Posted 11/17/2019 11:06 AM (GMT -7)
If you can force yourself to get out and walk for at least 20-30 minutes a day, your energy should improve at least a little. You could still have some inflammation. Good you are seeing your doctor soon. Make sure to mention all your symptoms to him. Do the suppositories work for you? They did nothing for me. The enemas work though.

Have you had bloodwork checked recently? Iron levels?
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CCinPA
Veteran Member
Joined : Dec 2014
Posts : 1572
Posted 11/17/2019 1:23 PM (GMT -7)
Sounds like you are still flaring. Can you see if you can get some enemas to help until you see your doc? I agree with Sara about the blood work. Have you thought about what you want to do for a treatment plan?

Waiting 4 months for a colonoscopy followup is kinda excessive. How do you feel now compared to when you had the scope? What did the scope show?

Be kind to yourself and don't think you have to be super woman. Rest when you need to.
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iPoop
Forum Moderator
Joined : Aug 2012
Posts : 16180
Posted 11/18/2019 11:28 AM (GMT -7)
Fatigue is often associated with prednisone-withdrawal, it might go away in the coming weeks. We can also get fatigue from anemia (low blood iron) and folate (vitamin b12) deficiencies. In your case, the pred is the most obvious one to blame.
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