Kidney stones. Little off topic but......

3timechamp

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Joined : Oct 2009

Posts : 1499

Posted 11/17/2019 7:58 PM (GMT -7)

Wow. Kidney stones are debilitating just like UC was. Got a terrible attack of KS last week. Absolute worst pain I was ever in. Had to have a procedure thru my.........family jewels. Knocked out of course. Went unconscious and throwing up from pain. Never have gone thru something like that before. Water. Water and more water with lemon. Anyone out there gone thru KS episode

quincy

Elite Member

Joined : May 2003

Posts : 31936

Posted 11/17/2019 9:53 PM (GMT -7)

I havent.....but it seems the fun doesn't want to end tho.
Good to hear you're on the mend.

Just curious if you're now on diet revision intake to help prevent stones from forming?

q

*Heather* I give suggestions, do with them what you will.
Status: ...Asacol 3 @ 2x daily; Salofalk enema @ 3rd night (nightly/ flares, tapered/maintenance)
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol 20mg as needed; Zantac 150mg; Pulmicort/Oxeze/Airomir (asthma); Effexor XR 75mg (depression); Rosuvastatin 10mg (cholesterol); Telemesartin 80mg (BP)
~vitamins/minerals/supplements; Probiotics....(RenewLife Ultimate Flora Critical Care + Genuine Health Advanced Gut Health 50 billion @ bedtime)
~Metamucil capsules 6 @ 2x daily with meals; Vitamin D 4500 IU
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~Sjogren's (secondary)...symtomatic treatment
"TREAT (FROM)BOTH ENDS" worth it !!

ambling

Veteran Member

Joined : Feb 2011

Posts : 849

Posted 11/17/2019 11:04 PM (GMT -7)

Yes! Feel for you...
Dehydration is the biggest factor for us....
Vomiting from pain....yes.

deltaforce

Veteran Member

Joined : Jun 2010

Posts : 2333

Posted 11/18/2019 5:11 AM (GMT -7)

It is a result of messed up gut pH.

According to the GI I had a consult with in the ER, he mentioned due to colitis, pH is messed up as in where it needs to be basic, its acidic and vice versa. As a result, where the oxalate salt needs to precipitate in the gut for excretion through the stools, gets reabsorbed (as it is in the soluble form) and the vicious cycle starts. The excretion and resorption saturates the system and at that moment, it precipitates where it is not supposed to, resulting in a kidney stone.

It makes perfect sense, at least in my case.

2 visits to the ER and after $20K plus in bills, no kidney stone in the last 8 years but nowadays I take great care, eat loads of fiber (soluble more than insoluble)

ambling

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Posts : 849

Posted 11/18/2019 6:32 AM (GMT -7)

The less you urinate, the easier it is for stone-causing minerals to settle and bond in the kidneys and urinary tract.
Drinking plenty of water is one of the best measures you can take to avoid kidney stones.

buckeyecrohnie

Regular Member

Joined : Apr 2014

Posts : 111

Posted 11/18/2019 7:05 AM (GMT -7)

3TimeChamp I have a jpouch too (4plus years!). This spring I had two different bouts with kidney stones. At first I thought there was something wrong with my jpouch or my liver (I also have PSC). The pain was worse than any pain I've ever had (that includes after my jpouch surgeries) and so sick to my stomach. I was laying on my bathroom floor rolling around in complete agony! My GI doctor also has a jpouch and he told me he also has had struggles with kidney stones. He said to drink all day everyday. I have a hard time keep up with fluids, but I am trying to do a lot better. I do not want to go through that again! Seems like another thing they don't tell you about with these surgeries! Good luck!

38 year old Female from the Buckeye State. Initally misdiagnosed Crohn's Oct 2013. 2nd opinion at Cleveland Clinic rediagnosed Severe Pancolitis/Ulcerative Colitis Jun 2014. 3 recurrences of C-DIFF Spring 2014. Fecal transplant May 2014. PSC diagnosis 2017.

Failed Meds: Asacol HD, Prednisone, Humira, Flagyl, Vanco, and Dificid
Step 3 J-pouch surgery finished: February 2015

straydog

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Posts : 17679

Posted 11/18/2019 8:14 AM (GMT -7)

Like others has said, this is the worst pain I’ve ever experienced in my life. I’ve been in pain before but nothing can compare to this type of pain. I got up the wee hours to go to the bathroom which was rare for me. When it hit I saw a star burst of colors, passed out & fell off the toilet.

I rarely drank water back then. I drink water now you can bet on that.

A friend of ours just has his stones blasted & he is doing great. He had one stuck in the duct. This was a little over a week ago. Good luck with your surgery.

UC & crohns patients are a little more prone to these lovelies.

Susie
Moderator in Chronic Pain & Psoriasis Forums

Post Edited (straydog) : 11/18/2019 8:20:51 AM (GMT-7)

Sara14

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Joined : Mar 2007

Posts : 5526

Posted 11/18/2019 9:22 AM (GMT -7)

Wow, sounds excruciatingly painful! Sorry you had to go through that.

35 yrs old; dxd UC March 2007 (couldn't get scope all the way thru). 9-29-16: chronic & active proctosigmoiditis (infectious cause). Reoccuring campylobacter & c diff. Oct-Dec 2016. Remission 12/25/16 until started smoking again in 2018 after 9 yrs quit. Maintenance: Delzicol, 6, 2xday; Rowasa nightly. Remicade 7/25/19 (worked 2 months). 50 mg pred 10/29/19. Began Humira & Imuran (150 mg) 11-16-19

3timechamp

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Joined : Oct 2009

Posts : 1499

Posted 11/18/2019 6:31 PM (GMT -7)

Drinking water water and more water. Pain is a great motivator and Kidney stone pain is the worst pain. Loved iced tea for 30 yrs. no more. Lemon juice in as much as possible. Lemon juice helps break up stones. No issues since last Thursday. Hope it stays that way

Post Edited (3timechamp) : 11/18/2019 7:26:38 PM (GMT-7)

clo2014

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Joined : Feb 2015

Posts : 882

Posted 11/19/2019 5:51 PM (GMT -7)

3X...So sorry you had to go thru that.

My doctor has me squeezing the juice of 1lemon into 34 to 40 ounces of water twice a day... Does that sound like enough lemon? I do not want to go thru that stuff...

Hope you don't have to go thru that again!

Clo

3timechamp

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Joined : Oct 2009

Posts : 1499

Posted 11/20/2019 5:57 PM (GMT -7)

Clo pain is a great motivator.....to do the right thing. Water is good

Post Edited (3timechamp) : 11/20/2019 7:10:36 PM (GMT-7)

Rosiedays

Regular Member

Joined : Jul 2017

Posts : 232

Posted 11/21/2019 6:00 AM (GMT -7)

Thank you for the warning! Another reason to keep having hot water with lemon smile

iPoop

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Joined : Aug 2012

Posts : 15512

Posted 11/21/2019 8:40 AM (GMT -7)

Sorry, I can empathize as I had a kidney stone when I was still in highschool (back when dinosaurs ruled the earth...) and it doubled-me over in pain and took my breath away. I barely drank much at all back then, a small glass of juice in the morning and glass of milk at supper and that's about it. The stone passed on its own with some IV hydration at the hospital, plus the tons of drinks the nurses kept bringing me. Ever since, I learned my lesson and drink like a fish. A bit different in your case, as a j-pouch makes you dehydrate easier. Certainly keep the liquids to ya!

That incident was long before I had UC, so I cannot really compare the pain levels.

Moderator Ulcerative Colitis
John, UC Proctosigmoiditis in Remission
Rx: Remicade @5mgs/kg/6wks; 50mgs 6MP; nightly Rowasa
Luckily farting works like burping and not like sneezing

Sassysback

Regular Member

Joined : Dec 2018

Posts : 52

Posted 11/22/2019 10:52 AM (GMT -7)

For me the kidney stone I passed was far more excruciating than any UC flare I've experienced. I had this at least 10 years into the onset of UC. In fact I had back pain for many months after. But at the time drinking water was not part of my regiment. I drank far too much coffee. I am cutting coffee down (4 cups a day) to 2, and trying to consume a lot more water now. I never want to go through that again.

58 yr Female = UC 20+ yrs in remission until Oct 2018.
Left sided Colitis currently active.
3200 mg Asacol daily & Pentasa rentension enemas on and off
Anxiety/Depression : currently Celexa 40 mg

"Living and still learning in this ever challenging journey through life and illness with love and support from those who share"

3timechamp

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Joined : Oct 2009

Posts : 1499

Posted 11/26/2019 6:05 PM (GMT -7)

Just got results from Dr about my KS attack. I have 2 stones. 1 large. 1 small. Both still in kidney. They inserted a stent so my pee can pass thru etherer. They will put me back in hospital. Knock me out. Remove stent. Laser both stones. Then insert another stent with string coming out thru my family jewels(hello momma-ouch). Then they pull string out after few days. And I thought colon surgery would be my last health issue. Another day another pain ,soreness etc etc

Sara14

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Joined : Mar 2007

Posts : 5526

Posted 11/26/2019 6:15 PM (GMT -7)

Wow -- ouch! Hope it all goes smoothly and that it isn't too painful.

35 yrs old; dxd UC March '07 (couldn't get scope all the way thru). 9-29-16: chronic & active proctosigmoiditis (infectious cause). Reoccuring campylobacter & c diff. Oct-Dec '16. Remission 12/25/16 until started smoking again in 2018 after 9 yrs quit. Delzicol. Rowasa. Remicade 7/25/19 (worked 9 wks). 50 mg pred 10/29/19. Humira & Imuran 11-16-19. Zofran. Calcium & Vit. D.

3timechamp

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Joined : Oct 2009

Posts : 1499

Posted 11/26/2019 6:23 PM (GMT -7)

Thanks Sara.No anestesia when pulling string out[BIG OUCH].Asked Dr if my 88yo mom can come and hold her 60 yo sons hand???? Just kidding.If i got thru 3 step colorectal surgery then hernia i think ill be ok

Sara14

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Joined : Mar 2007

Posts : 5526

Posted 11/26/2019 8:03 PM (GMT -7)

Wow, that sounds awful. You are tough though. I know you'll pull through it!

3timechamp

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Joined : Oct 2009

Posts : 1499

Posted 11/26/2019 9:03 PM (GMT -7)

Sara is “you’ll pull through it “ a joke??? Dr will pull through it. Gently I hope. Ha ha

quincy

Elite Member

Joined : May 2003

Posts : 31936

Posted 11/26/2019 9:37 PM (GMT -7)

3tc, LOL...good one!

Another stint of recovery for you...take it easy for a bit. Hope no new medical events join the party.

q

Sara14

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Joined : Mar 2007

Posts : 5526

Posted 11/26/2019 9:54 PM (GMT -7)

Omg, no, hahaha. I didn't even realize I made that bad pun. Let us know how it goes!

FlowersGal

Veteran Member

Joined : Feb 2017

Posts : 625

Posted 11/27/2019 11:28 AM (GMT -7)

When I was in ER when first diagnosed there was a young man across the aisle from me with a kidney stone. I’ve never seen someone in such pain! I’ll never forget that.

Sorry you’re having to deal with this after all you’ve been through.

::UC- the disease that keeps giving (problems!)

UC pancolitis DX March 2016, Partial Colectomy for diverticulitis Sept 2014
Apriso .375 g x 4/day, Canasa & Uceris foam if needed.
Probiotics, Reuteri pearls, CoQ10, Metamucil daily.
Started Entyvio 3/29/17 (Constant flares since March 2016 only relieved by Prednisone)
IN REMISSION!

3timechamp

Veteran Member

Joined : Oct 2009

Posts : 1499

Posted 11/28/2019 5:51 PM (GMT -7)

KS is worst pain I’ve ever had. UC flares hurt. KS make u blackout from pain. Now that’s pain

jazzgtrl4

Regular Member

Joined : Aug 2009

Posts : 305

Posted 12/3/2019 10:54 AM (GMT -7)

Ive givin birth to three, one needing surgery to get it out.... My urologist said UC and Kidney stones go hand in hand...drink alot of water with lemon juice.

Lialda 2 a day
MMJ
Phillips Probiotic

3timechamp

Veteran Member

Joined : Oct 2009

Posts : 1499

Posted 12/4/2019 5:50 PM (GMT -7)

Jazz water and lemon juice all day.Pain is a great motivator to change ones diet

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