Just wanted to give an update.
On day 4 of this therapy, my bowels started to relapse. I had urgency and frequency that was like 2 months ago when my flare was really bad. The HT group said it's normal to have a bit of a relapse before you start getting better, but for me it wasn't worth it. I wasn't willing to go through fulminant flare hell again with the hope that maybe the worms make me better down the road. I ended up aborting HT by taking mebendazole, and my bowels improved immediately.
It's now about
2 weeks later, and my UC is severely relapsing. It's possible that the worms weren't all killed, or something else is happening. It's unusual for me to go from the recovery phase of a flare back into the acute phase, and this feels like an infection. The only obvious change is the worms.
My doctor has given me a second round of mebendazole, but it does not seem to be creating improvement like it did last time. I am frightened. I have never had a flare go in reverse like this, and so fast.
The HT group says I probably started with too many worms. Maybe starting with 5 would've been better.
I can't recommend HT for the simple reason that it's too unpredictable. In most people the worms are guaranteed to cause a relapse at some point before you get better, but whether this happens at day 4, day 21, or some other time is unclear. It's also unclear how severe the relapse will be. It's also unclear whether the worms will grant lasting improvement. Some people permanently worsen from the worms, even after months of waiting.
It was worth a try I guess, but I may be paying the price now, IF this is somehow related. Not sure yet. Like I said, I can't recommend HT because it's too chaotic. If only there were more research done that could provide better guidelines, but HT is community driven and the only data available is from people's experience reports.
Anyway, not for me. Now I have to figure out how to manage what's happening to me