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After surgery do u have problem with stool while sleeping?

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Ulcerative Colitis
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3timechamp
Veteran Member
Joined : Oct 2009
Posts : 1499
Posted 11/30/2019 3:52 PM (GMT -7)
I cant seem to eat a late meal or i have a BM while sleeping. Average 1 accident a week.I will certainly take the trade off if that's only issue i have.I love to eat,its actually keeping me slim if i'm not eating late.I had incisional hernia[bc of little weight gain and lifting] after my 3 surgeries so eating less is good in many ways
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ks1905
Veteran Member
Joined : Sep 2005
Posts : 5692
Posted 11/30/2019 4:43 PM (GMT -7)
Have you tried fiber at night? I don’t have any leakages or needs to get up at night so I don’t have much personally experience with this.

I’ve seen some people on jpouch.org who got scripts for tincture of opium to help with their night time issues. Maybe you want to ask for some suggestions from that site.
Keith

DX'd with Severe Pancolitis June 2005
Previous Meds: 5ASAs, Predisone, 6-MP. Remicade, Humira, Simponi, Cimzia & Cyclosporine
3-step J-Pouch surgery: 2013 & 2014

Current Condition: Chronic Pouchitis -- Not as bad as I thought it would be
Current Meds: Stelara
Total Hip Replacement: 12/16 -- Thanks Prednisone!!!
www.healingwell.com/community/default.aspx?f=38&m=3755226
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notsosicklygirl
Forum Moderator
Joined : Dec 2008
Posts : 17515
Posted 12/2/2019 8:04 AM (GMT -7)
I don't. I have read some people do, but I am a very light sleeper. I get up if I need to go.
Moderator: UC
Currently: no meds 6/15 Step 1 J-pouch Surgery Complete 9/15 Step 2 Complete 11/15 Step 3 Complete
From Sickly to UC Free

Give a man a fish and he will eat for a day; teach a man to fish and he will eat for a lifetime; give a man religion and he will die praying for a fish
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Bull101
Veteran Member
Joined : Feb 2015
Posts : 650
Posted 12/2/2019 8:47 AM (GMT -7)
Depends on what I eat and how deep I sleep. I occasionally will have an accident if it's very diarrhea type stool and I'm in a deep sleep. It's usually not a ton though.
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buckeyecrohnie
Regular Member
Joined : Apr 2014
Posts : 111
Posted 12/3/2019 8:25 AM (GMT -7)
3time this happens to me occasionally even though I've had my j-pouch for 4 years. Every few months it seems to be an issue. It usually is when I've eaten late and/or I'm really tired and I don't wake up. I try to eat lightly at dinner and little to nothing after dinner to keep this in check. I always have to get up in the middle of the night at least once and usually twice. This is the one thing that upsets me the most about my jpouch but it does beat the alternative.
38 year old Female from the Buckeye State. Initally misdiagnosed Crohn's Oct 2013. 2nd opinion at Cleveland Clinic rediagnosed Severe Pancolitis/Ulcerative Colitis Jun 2014. 3 recurrences of C-DIFF Spring 2014. Fecal transplant May 2014. PSC diagnosis 2017.

Failed Meds: Asacol HD, Prednisone, Humira, Flagyl, Vanco, and Dificid
Step 3 J-pouch surgery finished: February 2015
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CCinPA
Veteran Member
Joined : Dec 2014
Posts : 1295
Posted 12/3/2019 11:03 AM (GMT -7)
The nights you have a bigger meal, could you set your alarm to wake yourself up partway through the night to empty you pouch? Maybe not ideal, but maybe better than having an accident?
60 yo female diagnosed w/UC to mid transverse 1/1/13, now UC or Crohn's colitis. Remission on Entyvio 10/2016-12/2017 before losing response. Had response to Humira with loading doses in Nov 2018, but then lost response. Current meds: Remicade 3/15/19, Asacol HD 2 Tabs 3x/day, Capozide 1/day (hypertension). Dexilant.
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3timechamp
Veteran Member
Joined : Oct 2009
Posts : 1499
Posted 12/3/2019 8:13 PM (GMT -7)
CC might sound crazy but i would rather sleep thru an accident.I'm a heavy sleeper,i am a contractor for millionares so i'm mentally and physically tired most days so i need to sleep well.I'm eating dinner earlier and that helps plus a lighter dinner helps
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notsosicklygirl
Forum Moderator
Joined : Dec 2008
Posts : 17515
Posted 12/3/2019 10:44 PM (GMT -7)
Sometimes I wish I could sleep. I am up 10x a night for one thing or another. I know it sounds crazy, but it's just my life. I wish I could just get a decent night of sleep too, but I can't. I have elderly pets...
Moderator: UC
Currently: no meds 6/15 Step 1 J-pouch Surgery Complete 9/15 Step 2 Complete 11/15 Step 3 Complete
From Sickly to UC Free

Give a man a fish and he will eat for a day; teach a man to fish and he will eat for a lifetime; give a man religion and he will die praying for a fish
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Andrina
Veteran Member
Joined : Aug 2011
Posts : 3480
Posted 12/4/2019 6:42 AM (GMT -7)
When I was not on azathioprine I would soil myself each night. I had to wear diapers again. I'm back on azathioprine and it's been much better.
UC since 2002
Colectomy 11/8/2018
J-Pouch creation 4/4/2019
Reconnection 5/28/2019
Azathioprine 100 mg
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Sara14
Veteran Member
Joined : Mar 2007
Posts : 5526
Posted 12/4/2019 7:26 AM (GMT -7)
You guys make me extremely scared if I ever have to get surgery. sad Then again, I don't remember ever once in my life sleeping straight through the night so waking up several times would not be any different for me. I would say I wake up at least 10 times most nights. But soiling the bed would not be fun.
35 yrs old; dxd UC March '07 (couldn't get scope all the way thru). 9-29-16: chronic & active proctosigmoiditis (infectious cause). Reoccuring campylobacter & c diff. Oct-Dec '16. Remission 12/25/16 until started smoking again in 2018 after 9 yrs quit. Delzicol. Rowasa. Remicade 7/25/19 (worked 9 wks). 40 mg pred. Humira & Imuran 11-16-19. Zofran prn. Calcium & Vit. D. Multivitamin w/iron.
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notsosicklygirl
Forum Moderator
Joined : Dec 2008
Posts : 17515
Posted 12/4/2019 9:24 AM (GMT -7)
Sara, if you're up a ton like I am, I doubt you would soil yourself. I've never done it. I don't sleep heavily enough to possibly wet myself without knowing.
Moderator: UC
Currently: no meds 6/15 Step 1 J-pouch Surgery Complete 9/15 Step 2 Complete 11/15 Step 3 Complete
From Sickly to UC Free

Give a man a fish and he will eat for a day; teach a man to fish and he will eat for a lifetime; give a man religion and he will die praying for a fish
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CCinPA
Veteran Member
Joined : Dec 2014
Posts : 1295
Posted 12/4/2019 11:06 AM (GMT -7)
I work with multi million $$ accounts too, but don't have the physical work to contend with. I haven't slept all night since I was a teen. I generally get up 1-2 times every night to pee.

I know in the past you said you were a heavy sleeper, so my suggestion was just for those occasions when you eat late. I thought you could deal with broken sleep on a rare occasion rather than pooping in bed. But if you'd rather poop the bed than break up your sleep for 1 night ... go for it! It's your bed lol
60 yo female diagnosed w/UC to mid transverse 1/1/13, now UC or Crohn's colitis. Remission on Entyvio 10/2016-12/2017 before losing response. Had response to Humira with loading doses in Nov 2018, but then lost response. Current meds: Remicade 3/15/19, Asacol HD 2 Tabs 3x/day, Capozide 1/day (hypertension). Dexilant.
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ks1905
Veteran Member
Joined : Sep 2005
Posts : 5692
Posted 12/4/2019 5:43 PM (GMT -7)

Sara14 said...
You guys make me extremely scared if I ever have to get surgery. sad Then again, I don't remember ever once in my life sleeping straight through the night so waking up several times would not be any different for me. I would say I wake up at least 10 times most nights. But soiling the bed would not be fun.

I sleep through every night for at least 7 hours without any issues. I wake up, make coffee and walk around my house without any urgency and go when I feel like it.

I have chronic pouchitis and treat with stelara. I have no urgency or leakage issues. Some people have to find the right mix for their pouch and how it behaves.

Having a jpouch is a compromise from having an unhealthy colon.
Keith

DX'd with Severe Pancolitis June 2005
Previous Meds: 5ASAs, Predisone, 6-MP. Remicade, Humira, Simponi, Cimzia & Cyclosporine
3-step J-Pouch surgery: 2013 & 2014

Current Condition: Chronic Pouchitis -- Not as bad as I thought it would be
Current Meds: Stelara
Total Hip Replacement: 12/16 -- Thanks Prednisone!!!
www.healingwell.com/community/default.aspx?f=38&m=3755226
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3timechamp
Veteran Member
Joined : Oct 2009
Posts : 1499
Posted 12/4/2019 5:49 PM (GMT -7)
Sara i will take my life now compared to UC monster. .I have been eating earlier and lighter and not having any issues while sleeping.My days are anxiety free which i rarely had when i had my colon Please Don't ever base having surgery because someone had a BM while sleeping.My quality of life now is a beautiful thing.Hope u all get there one day
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buckeyecrohnie
Regular Member
Joined : Apr 2014
Posts : 111
Posted Yesterday 7:00 AM (GMT -7)
Everyone has to base their surgical decision on their own health. Don't base your personal decisions on someone else's experiences. I would be up all night when I had UC. If I have to get up a time or two at night, I can live with it. The occasional accident is annoying and embarrassing, but I can deal with it. Before I had surgery I could be in the bathroom and not make it to a toilet. The minor inconveniences my J-pouch causes me is nothing in comparison to UC.
38 year old Female from the Buckeye State. Initally misdiagnosed Crohn's Oct 2013. 2nd opinion at Cleveland Clinic rediagnosed Severe Pancolitis/Ulcerative Colitis Jun 2014. 3 recurrences of C-DIFF Spring 2014. Fecal transplant May 2014. PSC diagnosis 2017.

Failed Meds: Asacol HD, Prednisone, Humira, Flagyl, Vanco, and Dificid
Step 3 J-pouch surgery finished: February 2015
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Sara14
Veteran Member
Joined : Mar 2007
Posts : 5526
Posted Yesterday 7:23 AM (GMT -7)
Ok, thanks guys. smile
35 yrs old; dxd UC March '07 (couldn't get scope all the way thru). 9-29-16: chronic & active proctosigmoiditis (infectious cause). Reoccuring campylobacter & c diff. Oct-Dec '16. Remission 12/25/16 until started smoking again in 2018 after 9 yrs quit. Delzicol. Rowasa. Remicade 7/25/19 (worked 9 wks). 30 mg pred. Humira & Imuran 11-16-19. Zofran prn. Calcium & Vit. D.
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iPoop
Forum Moderator
Joined : Aug 2012
Posts : 15512
Posted Yesterday 9:10 AM (GMT -7)
Sara, you seem to have an aggressive and non-responsive case, and are on your second biologic. I think at this stage of your battle with UC, it cannot hurt to learn more about colorectal surgery just in case you might need it some day. I'd read up on it and outcomes. You still have many medical options available on the table (stelara, entyvio, xeljanz) so it is anything but pre-determined. I know you're smart and inquisitive on these things, and it's good to broaden your knowledge and dispel any pre-conceived fears you might have on colorectal surgery. I know many gasteroenteroligists wield surgery like an executioners ax over our heads, which is the absolute last thing that should be done. Not at all trying to scare you, as I know you have a bit of health anxiety. To the contrary, knowledge often makes you fear things like colorectal surgery a lot less. I know I am at peace with surgery, if my case ever warrants it and I cannot be controlled through medicinal means with a good quality of life then I'll jump on the surgery bandwagon without hesitation. More or less where I am getting at, as that mental hurdle is never an easy one to jump smile
Moderator Ulcerative Colitis
John
, UC Proctosigmoiditis in Remission
Rx: Remicade @5mgs/kg/6wks; 50mgs 6MP; nightly Rowasa

100% Invisible illness: just because you feel like crap doesn't mean you have to look like it
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Sara14
Veteran Member
Joined : Mar 2007
Posts : 5526
Posted Yesterday 10:11 AM (GMT -7)
Thank you, John!
35 yrs old; dxd UC March '07 (couldn't get scope all the way thru). 9-29-16: chronic & active proctosigmoiditis (infectious cause). Reoccuring campylobacter & c diff. Oct-Dec '16. Remission 12/25/16 until started smoking again in 2018 after 9 yrs quit. Delzicol. Rowasa. Remicade 7/25/19 (worked 9 wks). 30 mg pred. Humira & Imuran 11-16-19. Zofran prn. Calcium & Vit. D.
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